Brain Radiotherapy Nightmare

Has anyone suffered like my wife, after having 2/3 sessions of Brain Radiotherapy to make sure her lung cancer would not spread. The Radiotherapy did work, but after the sessions, where Brenda asked for the eyes to ve cut put of her mask that she had to wear during the sessions, this was in 2016, and today Brenda has mobility problems with leg muscle problem's, now uses a wheelchair, also Context Radiation Retinopathy, which is leaking in both eyes, caused by the Radiotherapy, she is now having Eye Injections. This is ongoing ( 41 lots of Injections in both eyes) We think this ds so unfair, and wondered if anyone has similar problems. Thanks Chris & Brenda 

  • Good morning Chris

    I'm so sorry to hear that Brenda is struggling with radiation retinopathy. It sounds like it's been a very difficult time for you both and it's understandable that you both feel it's so unfair to be in this position. 

    I've had a look through the forum and unfortunately, I can't see any other recent posts where members have mentioned this problem. Hopefull,y someone who does have experience with this will post to share their experiences with you. 

    If you or Brenda would like to talk things through with one of our nurses you're most welcome to give them a call. I know they will be happy to listen and offer any advice, information and support they can. They're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    I do hope that you're both being well supported by family, friends and health professionals. Keep in touch Chris and let us know how you're both doing. 

    Sending you both my best wishes, 
    Jenn
    Cancer Chat moderator