Advice about Chemotherapy support

Hi

My mum has recently been Diagnosed with Myeloma. Following scans she has been told she needs a course of Chemotherapy, steroid and immunotherapy treatment. For some reason, in my head I had thought it was 28 day course of oral medication, taking at home with close monitoring. This world is completely new to me. But turns out the treatment will be once a week at Hospital with bloods once a week over a 2 month period.

I am hoping to understand what this actually involves, the real reality of this and the effects on her, on the day and for the duration of the whole treatment. Is she awake during treatment? Is it delivered via IV or orally? How the treatment will affect her mentally and physically on the day and the week in between treatment and so on? I want a realistic view of it. I don’t live locally to her so how I can best support her? And support my dad? Are there provisions where NHS could provide transport as I’m not sure my Dad will be in a suitable state to drive her to and from appointments.

  • Hi Kath505, 

    I am so sorry to hear about your mum's recent myeloma diagnosis - it can all be a bit overwhelming when faced with a new diagnosis and it can be really difficult to understand what the treatment will be like. Our page on treatment for myeloma will hopefully give you a little guidance as to what to expect and I would suggest you have a look at the section on first treatment for myeloma as well as the information on how you have treatment for myeloma. If you have any questions or want to talk things through with someone, don't hesitate to have a chat to our cancer nurses on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm. 

    A myeloma diagnosis and treatment can have significant repercussions both physically and mentally and we also have a useful page on our website on coping with myeloma which will give you some good insight into how a myeloma diagnosis may affect your mum and the support that might be available to her including on a practical level. As you don't live locally you might feel a bit limited in what you can do but I am sure that you can still support your mum in the best possible way and that she will appreciate the fact that you are thinking of her and doing everything you can to support her and your dad. 

    We have information on our website for Family, friends and carers which is a great resource on how to support someone with cancer . It is worth also researching what provision is available in your area to provide transport and drive your mum to appointments. I have found this NHS page on how to organise transport to and from hospital and you will see there that there is a service called non-emergency patient transport services (PTS) but PTS may not be available in all areas. To find out if you're eligible for PTS and how to access it, you'll need to speak to your GP or the healthcare professional who referred you to hospital.

    I hope that you will hear from other members of our community who have found themselves in a similar situation before and that they will have good tips for you based on their personal experiences with looking after a loved one with cancer. 

    Best wishes to you and your mum and I hope that her treatment goes well 

    Lucie, Cancer Chat Moderator