Metastatic Urothelial cancer

Hi

my dad has been diagnosed with advanced bladder cancer and he is waiting for a scan and appointment with oncologist.  He lost his wife 3 weeks ago and is really struggling.  I am trying to support him as best I can but I’m finding the loss of my mom and the fear of losing my dad really hard.  I can’t seem to talk about this with anyone.

any advice would be greatly appreciated 

  • Dear Mommajo

    So sorry to hear of your loss and your dad's diagnosis. My dad too, in the past 2 weeks has been dealing with the tests for bladder cancer. He had the cystoscopy that revealed a very large tumour. We were not expecting anything at the time as it was just a precautionary test the GP requested and to be honest when the nurse showed the photo of the bladder with the growth, I nearly passed out in shock and fear. I had to excuse myself and head to the bathroom to compose myself incase I made my dad scared. As the primary carer I know you feel you need to be strong for them, and suppress your own fears. But you have to look after yourself too. After all this intensity and running on adrenaline i am now sick with the flu. So do take some time for yourself if you can.

    What worked and helped a great deal for us was my daughter- who is ever cheerful and did little things like playing dad's favourite tunes in the car on the long journeys to the hospital, just doing things we normally do on a week day with dad.  The wait for the tests and results and treatment plan are pretty awful. I hope your nursing team and oncologists are as nice as ours. They told us to call them any time if we had problems. Wishing you strength and your dad better health . 

  • Offline in reply to LizaT

    Dear LizaT

    Thank you for your kind words.  I know I’m doing too much and need to keep time for me.  I will get there, everything is raw at the moment. As long as my dad is ok that’s all that matters.

    I do hope everything goes ok with your dad.

    x