My mum has had non-Hodgkin lymphoma for 21years, she had a diagnosis of malt lymphoma 8 years ago.In April last year all treatment stopped and mum’s was put under palliative care. Mum was an ongoing problem with high calcium, early January mum went in as she had fallen, she had a horrendous experience for the first week being constantly moved and seeing different Drs. when mum was finally admitted within a day we had a ‘where would mum like to be when she passes’. We are now at home & mum has become very unwell with the calcium, initially her GP wanted her to be admitted first treatment but mum is adamant that she doesn’t want this, they have mentioned about treating at home, but now no-one is getting back to me about this. The general nurse is organising a hospital bed and has explained about end of life and the just in case meds. The hospice nurse appeared slightly shocked when I said we were under the impression of mum not having long. We have a phone call appointment with a palliative care Dr on Thursday. 
Anyway I feel as if I’m on a rollercoaster with how my mum is, currently she is bedridden and sleeping, also emotionally and with the dilemma of should I go the work but then I may need to come off work again. I am aware that they could treat mum but that we could find ourselves back where we are now in month or so time.