Hello Poppin,

I am so sorry your mum has been diagnosed with this. My dad was diagnosed in November '23 and passed away April '24, aged 82. Originally he was offered radiation but  deteriorated too quickly for this to proceed so was on steroids to manage the swelling in the brain.

I was advised if he did have radiation, it would only have given him an extra 3 months, 6 months absolute max. 

Mentally he didn't really deteriorate, would just get confused at times. It did affect his mobility and he did require 24 hour care. He wasn't in pain but got frustrated as he became less mobile and independent. He was very active before this and looked much younger than he was.

He received 24 hour care free of charge because of his terminal diagnoses., it is not means tested. This was arranged by Macmillan. I did not realise this was available and thought we would have to pay. 

It is such a horrible situation to be in, and your mum is still young. Unfortunately life expectancy with this diagnosis is very short, I would concentrate on enjoying the time you have left.

Best wishes, Jane.