My dad has stage 4 lung cancer and was started on Afatinib in September. He has been SO well since this and his scans in October showed a significant response to the treatment. He got what I think was Flu at the beginning of December and just hasn’t been right since. He has now started with the cough again and shortness of breath. I convinced myself he possibly had a lingering chest infection but my mind was working overtime and I managed to get his 3 monthly scan brought forward a few weeks…for reassurance I hope. Over the last day or so, he seems to have gotten abit worse, not enough where he needs to go to hospital but I can’t help but worry his treatment has stopped working. I called today and spoke with a nurse who was being very sketchy on the phone asking what we knew and arranged for him to go to clinic on Monday to see the dr. I’m now extremely anxious that things aren’t good. I’m trying to reassure myself that surely he can’t be fine one day with such a good response to treatment and the next just become so unwell (when I think he had flu) surely if the treatment stopped working it would be a gradual thing? I can’t help but think the worst as much as I’m trying to sway my mind from that. I honestly can’t focus on anything and I’m dreading Monday like I was all those months ago when he was first diagnosed. It feels like torture
