My husband had a full nephrectomy in January this year. Diagnosed with renal cell carcinoma stage 4 metastasis in April. He had immunotherapy which didn't work and has since been taking cabozantinib tablets 60mg.
Cancer metastasis to brain, which he had radiotherapy on, still waiting for follow up mri in November. Metastasis also to lymph nodes, liver and other kidney. He is going to be having radiotherapy on main tumour at site where kidney was removed. This is because tumour is pressing on nerves in spine and the hope is they may be able to shrink tumour to relieve some of the pain. He is in acute pain all the time, therefore taking lots of medication.
The local hospice are involved in the pain management and they have agreed that maybe a short stay with them, may help.
I have noticed the weight loss, sickness, fatigue, loss of appetite and not drinking much. My husband is in denial and does not want to know his prognosis. I on the other hand, feel completely different. I feel the need to know, so I can deal with all the problems that cancer throws at us. I go to all my husband appointments and am very much part of all discussions. How can I find out exactly what's happening to my husband, so that I know what I am dealing with, without causing upset to my husband. We have a meeting with consultant next week, how can I ask my husband to wait outside for me whilst I discuss his end! This is all so difficult, pretending that everything is going to be OK. It's taking its toll and I am starting to feel depressed. Could anyone please advise me?
