My mum was diagnosed with pancreatic cancer 5 weeks ago. Symptoms started 24 August when we noticed she was a little yellow and since then the decline has been rapid. The Symptoms of jaundice made her so poorly and following a failed ERCP she was admitted to hospital for 18 days where she was treated for acute kidney infection and sepsis. They finally did the ERCP which has relieved some of the jaundice symptoms and we finally got her home. We now feel in limbo. We have had no follow up appointment and have no idea if the cancer has spread. Mum is fading away, is breathless when doing even the slightest thing and is sleeping most of the time. It feels such a long wait whilst test results are gathered. We were told that a referral to a palliative care team can only take place once all results are back. We feel quite isolated at the moment, its been a very long 4 weeks and I do feel as though I am being impatient. However I feel like by the time things are in place it could be too late.
Has anyone else experienced the same? Its so life consuming both emotionally and mentally for us all. I really don't know how my mum is coping like she is. It's heartbreaking to see xx
