My husband was referred by his GP on the cancer pathway back in late June. Everything has happened in 2-3 week time frames i.e. seeing a consultant - tests - more tests etc. It took 9 weeks to diagnose the cancer, this was 7 weeks ago. As he was originally under ENT, he was then moved over to respiratory. 4 weeks ago, as the result of a PET scan, we found out that he has secondary bone cancer, but still no definite answer for the primary site. More tests. Last week, we found out, from a meeting with a respiratory nurse, that it has been agreed the main site is now esophageal, so a referral is being made to the gastric oncologist. At the meeting with the respiratory nurse, I mentioned the 31 and 62 day government standards, we were (then) on day 105. No information on anything in-between the few meetings at the hospital to date.
I have no idea when the meeting with the oncologist will be - 2/3/4 weeks? We do know that the cancer is incurable and any treatment will be life prolonging. I can't begin to state how many times I've asked myself the question 'how long can the delay be for life prolonging treatment'?
Has anyone else experienced this?