Carer in distress

 Hi I'm new to this forum.

My husband has a pancreatic net tumour,  diagnosed 15 months ago  by chance,  no symptoms or spreading after 5 regular ct scans 3 months apart.  It has been a roller coaster of emotions. He always had a few whisky before bed,but it has escalated to drinking all day and sometimes in the night. He is dehydrated through the whisky which is causing dizziness and seizures. I've spoken to nurses that come and advised him to cut back. Since then he has increased his drinking, also not eating and his memory is affected, it's like he's given up. He's in bed all day and asleep most of the time. I can only imagine what he's going through,  but I am out of my mind with worry. Why isn't he fighting? 

  • Hi Worried-carer and a very warm welcome to our forum, 

    Thank you for coming here and sharing your story. I am so sorry to hear that your husband has been diagnosed with a pancreatic NET tumour and I can imagine it has indeed been a rollercoaster of emotions for you both since the diagnosis and it sounds like he may have increased his drinking as a coping mechanism but as you know alcohol is never a solution and will only make things worse, both on a psychological and physical level as it will also have a negative impact on his cancer and his recovery. You mentioned that he has been drinking all day and sometimes in the night and the dehydration that results from this excessive drinking as well as the dizziness and seizures are very concerning and you did well to mention this to the nurses but as he hasn't managed to cut back despite their recommendation to do so, it sounds like you may need to get in touch with his GP/medical team directly who I think will be better placed to advise you on this. So give his doctor a call as soon as you can and mention the dehydration, seizures and dizziness and the amount he has been drinking as they will also want to make sure he is keeping hydrated and they will want to know about the physical symptoms you describe and treat them if needed. It sounds like your husband needs expert help and the alcohol is inducing this permanent state of drowsiness and to answer your question as to why he isn't fighting, the excessive drinking is certainly not helpling and preventing him from thinking clearly and having the energy to keep a fighting spirit. This will take its toll on you too who are by his side feeling powerless. But I think the priority right now is to seek help for this drinking problem by talking to his doctor about it and once this is sorted it will be a big weight off your shoulders. Don't hesitate too to contact organisations like the AA who specialise in supporting people who are having to deal with a drinking habit they also have a free helpline - have a look at the AA website and don't hesitate to get in touch with them and explain your particular circumstances. 

    Living with a NET is by no means easy and there is practical and emotional support you can both get to help you cope with your diagnosis and treatment. Our website has useful information on coping with NETs and on support at home when you have a NET and if you wanted to talk things through with one of our cancer nurses, they have a helpline you can ring Monday to Friday from 9am to 5pm - the number to call is free 0808 800 4040. 

    I hope this helps a little and I wanted you to know we are there for you and I hope that you will hear from other members who have been through something like this before and that they will be along shortly with comforting words based on their personal experiences. 

    Best wishes to you and your husband and I hope that things improve quickly for him and that you manage to talk to someone soon, 

    Lucie, Cancer Chat Moderator