I don't know what I'm doing

My mum was diagnosed with small cell just before christmas last year. She had chemo for a few weeks which put it to sleep. And then she had some radiation on her head to keep cancer from effecting her brain, which had in turn woken up her cancer again. She was offered chemo but was given a 20% chance of it putting it back to sleep, but the risk of her being even more ill or even her remaining days even shorter. So she has been living with me now, she is sleeping constantly, and looses touch with reality. She says she is cold and is under a quilt almost all the time, and is in pain what feels like constantly. She's asking to go back home but I'm not sure if it's a good idea. I've been trying to get her to be more active but it's not working. And now it's starting to become difficult to wake her for her medications. I'm at a loss of what to do. There's no one else in the family to help. No support as I am the family support. I'm alone.

  • Hello D1of3

    I'm sorry to hear about your Mum's diagnosis. Undoubtedly this has been a difficult time for you both and it sounds as if you've done a great job to be able to care for your Mum so far. 

    I'm sorry to hear that you don't have any support from family or friends. Being a carer can be an incredibly difficult, and at times, lonely role to fulfill. You don't mention in your post if your Mum has been referred to the local palliative care team or if you are receiving any regular support from other health professionals. 

    If she's not been referred then please get in touch with her GP surgery and explain the situation to them. They should be able to arrange for the appropriate team to visit her particularly with regard to her pain management. If your Mum has been referred and you have contact details for the palliative care team or a cancer nurse specialist, then please give them a call as well and ask for help. 

    If it would help to talk with one of our nurses for some support you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. I know they will be happy to listen and offer any advice they can. 

    Keep in touch D1of3 and let us know how you get on. 

    Best wishes, 
    Jenn
    Cancer Chat moderator