When I'm moved within England I got a hard copy of all my hospital notes, reports,and  operation notes. You can also get copies of MRI scans and CTs . You have to pay but it was well worth it for me as I could take the whole huge bundle with me as transfer of records took forever- months!! 

I was on surveillance not active treatment when i moved so I can only say that having my records stopped a delay with my next colonoscopy. 

It's also very important to register with a GP ASAP as everything seems to start there and also a good idea to have those hard copies with you as backup.

Awesome thank you that’s extremely helpful!!

Just thought of something more.Hospital records reports etc are from NHS England. But GP records are from your mums surgery- request via practice manager. Then with the 2 sets of info you get complete picture of primary and hospital records

Fab, you would think it would be one centralised digital system, and something someone could do with the click of a button.

Again thank you for the wonderful advice it’s is much appreciated 

Fab, you would think it would be one centralised digital system, and something someone could do with the click of a button.

Again thank you for the wonderful advice it’s is much appreciated 

You're very welcome. Apparently different hospital trusts don't share the same IT systems - good grief !  GP Systems rely on email from the hospital. At my grand old age of 68 I dispare lol. And dont get me started on hospitals sharing records  

I share your frustration, we are at the very start of this journey and I’m already frustrated with the lack of joined up thinking.  I’ve been bouncing between GP, private clinics, consultants now to a hospital - 4 weeks of trying to expedite getting my mum a diagnosis and that’s me doing MRI and PET CT scan privately.

i work in tech n it’s so obvious how things could be more efficient.

we now need a biopsy done but my mum is really struggling she’s losing mobility in her arms and hands and I want to bring her home but I’ve been advised to get the biopsy in England then do the transfer 

Difficult times. Seems like it might make sense to get biopsy done and histology report as quickly as poss and where she is likely to be quicker as a transfer will lose some time. 

 Good luck . Your mum is lucky to have you.