How can I help my mum

My mum , 88 was diagnosed with mesothelioma in April, the prognosis was months. We're in 3 months and I can see the increased trouble breathing, having to return to bed fatigued and chest pains. My dad is also unwell but insists mum help him as he's ill too, she does it to stop any shouting. Some of my siblings feel it's too soon to ask for palliative care help, the older ones feel it would maybe help but the trouble is we know nothing about this stuff except for what we've read. Now it's been suggested to have a discussion on what next steps to take with both parents being so ill. They don't want to get palliative care as mum might give up when realistically she's getting worse anyway. I just am going nuts and worried sick that they seem to think she could get past this when that's not the reality. Can anyone help me work out how to keep mum supported and not fall out with anyone 

  • Hello Elle2024, 

    This is so sad  - both your parents unwell; it does sound like you would benefit from some additional help and support. It is definitely worth discussing palliative care help with your mother's medical team. Having this important discussion on what the next steps to take is definitely a good idea especially with both your parents being so ill at the same time. It's so hard sometimes having to balance what seems to be the right and reasonable thing to do at this stage  with your parents' own wishes and desires and it's normal to feel so worried as a result because you want to do the right thing and it's sometimes difficult to know what is best. This is why talking to their respective medical teams is crucial, and finding out what they in their medical expertise would advise at this stage. 

    Our website has information which is specifically designed for Friends, family and carers with great advice on how to support someone with cancer and I would also strongly recommend you read our information on support at home for you and your family as well as our section on palliative treatment which will tell you more about what the palliative care team can do to help. I think it might also be beneficial to give our cancer nurses a ring on this free number 0808 800 4040 and talk things through with them - their helpline is open Monday to Friday from 9am to 5pm. 

    I hope that you will also hear from the experiences of others who have been in a similar place before. What you're going through at the moment is certainly not easy and there are some really tough decisions to make and I hope that you can talk to the specialists soon to help you find what would be best for your parents.

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thank you very much for replying. It's made me feel I'm not on my own. Mum did get worse and I called the dr,  he gave the correct medication, an oral suspension pain killer. This has helped and he also found out the hospital had made a referral to the hospice but it had been lost! He re referred and the hospice specialist nurse was out the next day.. I now feel that I'm not feeling in the dark at last. Thank you so much for the weblinks advice. Now we're on the right road to give the care our mum deserves at this stressful time xx