How do I cope with all of this? bladder/lung/liver/brain

Hi 

My dad has stage 3 muscle invasive bladder cancer. He prefers to go to his appointments so far on his own so I do not get complete stories at times. He tells me some points and my sister others. We try to compare notes but my sister's attention span is poor so she is often distracted mid sentence and does not often take on what I am saying. My dad has to go for a pre operative stress test where his general health is tested prior to a cystectomy. I have been invited to this next appointment but I am not sure if I am just the chauffeur as the hospital he has to attend is 1 hour away. 

Last year my mum lost her fight to lung and liver cancer at the age of 69. She developed urosepsis which accelerated the progression of the disease. My parents kept the extent of her illness to themselves, which I know a lot of people think they did to protect us, but it was more of a shock when I eventually found out how poorly she was. 

Up until recently, I was in a relationship with a man with a stage 4 brain tumour. I was witness to the seizure that lead to the diagnosis. He was given 18 months to live, he has lived 5 years so far. Due to the nature of the disease or potentially his underlying personality, he could be quite aggressive with me. I cared for him as best as I could  but I felt he was asking for more than I could give, especially when my dad became poorly so I ended the relationship. I felt his priority was himself, his mum and his daughter, which is fine, but my mental and physical health did not seem important to him. He also used me a bit financially.

I work as a nurse and I feel I have been completed drained of compassion. I am worried it will affect my ability to offer the care I want to give my patients. 

I am just looking to speak to people in a similar situation to myself. Also to offer advice to others in my position if I can

Parents
  • I'd say each case is different and this is your dad, not just a patient. I know it's hard to change stubborn people's minds about attending appointments with them - particularly older generation - but I would try and insist, talk them around. For me, having someone (my wife) not to just to ask questions, but also listen for all the bits that due to the circumstances I knew i'd forget or not hear. It was also a massive help that my wife is medical and can understand technical terms too

    So for me, it's not just the support angle, but the understanding what is being said so you can help your dad help himself,

Reply
  • I'd say each case is different and this is your dad, not just a patient. I know it's hard to change stubborn people's minds about attending appointments with them - particularly older generation - but I would try and insist, talk them around. For me, having someone (my wife) not to just to ask questions, but also listen for all the bits that due to the circumstances I knew i'd forget or not hear. It was also a massive help that my wife is medical and can understand technical terms too

    So for me, it's not just the support angle, but the understanding what is being said so you can help your dad help himself,

Children
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