Help - wife has stage 3 bowel cancer, struggling with fatigue

My wife was diagnosed with stage 3 metastatic bowel cancer with tumours on her liver 15 months ago. She had one round of chemo then 7 months of 3 weekly Pembrolizumab (Keytruda). She developed shingles in mid-January and then incipient sepsis 3 weeks later at which point the oncologist stopped the immunotherapy. She then had a bowel resection and liver surgery 3 apart, in mid-March and early June respectively. Throughout her treatment, my wife has suffered severe fatigue which has become very much worse since the cumulative effects of 2 lots of anaesthesia. She is now chronically fatigued and suffering from general memory loss, with her short term and prospective memory being particularly bad. She has also suffered a couple of ‘absent’ episodes and has also experienced various visual/migraine effects. Has anyone else suffered in this way and, if so, how long has it lasted and are there any recommendations for alleviating the symptoms?

  • Hello jodagriff,

                             it is so easy to underestimate the scale of the challenge your wife faces battling to recover to "normality". Once surgery is completed its tempting to feel that it's just around the corner and within reach, but it never seems to come quick enough.

    l went through very similar and found improvements painfully slow, l certainly learned patience that l never had previously. l tempered my expectation levels to a more realistic achievable attainability. To counter these l developed a determination to move forward each day if only by a miniscule amount. A persistent positive outlook is definitely required, one which allows you to function with the residual baggage imposed upon your body from the effects of the treatment that saved your life

    l am now ten years on and have achieved so much in the last seven years. l lead a better life and appreciate it so much more than ever before. Yes my short term memory is abysmal, and l find l can now only focus on one thing at a time with any interruption to my train of thought leading to complete derailment. l can see faces but only remember names further down the road .l cannot do everything l could before, but l can do things l never could before, its a complete reset of the balance in my world.

    l found that by embracing the changes rather than trying to recreate the past allowed life to become good, l hope both your wife and yourself.are able to do the same, just don't be too hard upon yourselves if it takes a while to get there,

                                                                                 David