Oesophageal cancer - advice

My husband, got diagnosed with oesophageal cancer last week after an endoscopy.  He had problems swallowing for a while and whilst i am grateful for the endoscopy doctor tell us there and then, we were in state of shock, especially when he said things like "established" and "quite large."

Things moved quick and we had the CT scan on Thursday last week and we are just playing the waiting game now.  We were given cards for the team but didn't want to ring on Friday, if we don't hear anything by Tuesday lunchtime we will chase, but we are scared and I feel very very alone.  I've spoken to MacMillian and had a good cry done the phone with them.

We have both jumped to worse case scenario, which I know isn't helpful and I am trying to be "the strong one" when inside I am falling apart.  34 years is a long time to be together (particularly for 2 guys)  and as I keep saying to him, battling to keep the tears back, "our story isn't finished yet"

Friend are saying the right thing by text, but unfortunately they don't translate into action, when I think about how I was there or them at various points in their lives....but now the boot is on the other foot....it hurts.  I've had to limit social media, at looking at people being happy makes me resentful. (which it shouldn't)

There are people worse off than me and ultimately this isn't about me, it about him.

Do these feelings of loneliness, confusion and sadness pass, or any tips on how to manage them.

Parents
  • Hi Adquelo, 

    I just wanted to offer you a very warm welcome to the Cancer Chat forum and let you know your post has been seen.

    I'm really sorry to hear your husband has been diagnosed with oesophageal cancer. This must have been very difficult to find out, but I'm glad you've reached out to us, as so many of our members will know what the both of you will be going through right now, so you are not alone, and I'm sure you will receive some support and advice from our community soon.

    A cancer diagnosis can bring about so many thoughts and feelings, and this news impacts not just the person diagnosed but their loved ones as well, so don't be too hard on yourself for how you are feeling.

    I'm glad speaking with Macmillan has helped, and I hope you've managed to get in touch with your husband's team for more information too, but if you'd like to discuss any of this further with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to support you and answer any other questions you may have at this time.

    Do keep posting if you find it helps Adquelo and remember that we will always be here for you.

    Kind regards,

    Steph, Cancer Chat Moderator

Reply
  • Hi Adquelo, 

    I just wanted to offer you a very warm welcome to the Cancer Chat forum and let you know your post has been seen.

    I'm really sorry to hear your husband has been diagnosed with oesophageal cancer. This must have been very difficult to find out, but I'm glad you've reached out to us, as so many of our members will know what the both of you will be going through right now, so you are not alone, and I'm sure you will receive some support and advice from our community soon.

    A cancer diagnosis can bring about so many thoughts and feelings, and this news impacts not just the person diagnosed but their loved ones as well, so don't be too hard on yourself for how you are feeling.

    I'm glad speaking with Macmillan has helped, and I hope you've managed to get in touch with your husband's team for more information too, but if you'd like to discuss any of this further with one of our cancer nurses, they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very easy to talk to and will do all they can to support you and answer any other questions you may have at this time.

    Do keep posting if you find it helps Adquelo and remember that we will always be here for you.

    Kind regards,

    Steph, Cancer Chat Moderator

Children
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