Hi , my partner also has a form of NET in the liver, lung and other areas. It’s small cells carcinoma. Don’t google it, it’s terrible. But what our doctor said is that most of the stuff you read online is outdated. Cancer research is very advanced and there are many more medicines available now than what you see on google. My biggest problem is trying to stay away from google actually.

Thank you for the info I’ve been going out of my mind with worry, my partner had a gastro net removed about 8 years ago but it would seem as though it wasn’t completely removed , we have to travel to a hospital in London for confirmation apparently that is the only place that the required scan is available I’m trying to stay positive as we’ve been told that they are small and hopefully slow growing but that is easier said than done as you’ve said googling it is not advisable but I can’t seem to help myself

Thank you for the info I’ve been going out of my mind with worry, my partner had a gastro net removed about 8 years ago but it would seem as though it wasn’t completely removed , we have to travel to a hospital in London for confirmation apparently that is the only place that the required scan is available I’m trying to stay positive as we’ve been told that they are small and hopefully slow growing but that is easier said than done as you’ve said googling it is not advisable but I can’t seem to help myself

I fully agree with you there, easier said than done, but we need to have faith in the doctors. Please also consider reaching out for mental health support- I’m finding it useful even with just one session. 

It’s very hard to have faith in anything at the moment, I hope your husband has effective treatment