Renal cell carcinoma with sarcomatoid differentiation

My husband was diagnosed on 8th April, after having tumour removed from perished kidney. Looking back, he had not been feeling completely well for at least a year, but kept dismissing it as a back ache.  He is due to start immuno treatment on Monday, he has a brain scan today to check it hasn't spread to that area.  There is already metastasis in his healthy remaining adrenal gland, back muscle near spine and nodules have been seen in his lung. He said that he has started getting headaches so is completely worried about the scan today.  It is heartbreaking to see him in pain and scared about the outcome.  I feel that being totally honest and knowing how aggressive this is, I can already see what is going to happen and it is making me feel almost like I am wishing this on him (totally illogical I know).  I have booked a mini break for us in-between treatment as I feel a sense of urgency to do everything that he ever wanted to do.  Is it selfish to keep visualising what life is going to be like without him? I think I am deep down preparing for the worst so that it doesn't hit me like a ton of bricks.  Can anyone please let me know about treatment results and my feelings (are they normal). 

  • Welcome to the forum Best1 although I'm sorry to hear about your husband's diagnosis.

    This must be such a difficult time for you both, but I'm glad you've joined our community as we have so many members here who will understand what you are both going through at the moment, so you are not alone on this journey, and I'm sure you'll get to hear about their experiences and receive some support and advice from them soon.

    If you or your husband would like to talk about any of this with one of our cancer nurses they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to support you and answer any questions you may have at this time.

    We're thinking of you, and wishing your husband all the best with the start of his immunotherapy tomorrow.

    Kind regards,

    Steph, Cancer Chat Moderator