Where to begin?

Hi,

Just a few hours ago my wife was given a diagnosis of aggressive brain tumour that cannot be treated. With life expectancy of a few year at best possibly worse. 

We have 2 young boys ages 9 and 7 and i ahve no idea how to tell them about this. How much do they need to know and how soon.

How can i help her best? 

How to cope with working and caring for her or when I would be expected to go back to work?

Just dont know how to begin with any of it. 

Please help

  • Hello Christopher12321

    Welcome to the forum although I am very sorry to hear about the news that has led you to us. I can only imagine what a difficult few days this has been for you all and it's understandable that you will be experiencing a rollercoaster of emotions and likely feel overwhelmed by things. 

    Hearing this kind of news is devastating and it's natural that you have many questions and your mind will wander to think about all the "What Ifs" that could happen in the future. For now, try not to think too far ahead as this will only fuel your anxieties. As the days pass and you come to terms with this diagnosis, there will be time to talk together about your worries and how you will navigate these. Hopefully, you have a good support network of family and friends around you who will support you both, and the boys, over the coming weeks, months, and longer into the future. 

    We do have some information on our website about talking to children about cancer which you may find helpful. I'd encourage you and your wife to get in touch with the boy's school and bring them into the loop as well. Often schools can provide pastoral support that can be really beneficial to children when dealing with a parent's illness. If your wife has been already given details for a clinical nurse specialist then you can talk with them as well for advice and support about how and when to share this news with your children. 

    In the meantime, I wanted to give you some links to other sources of support that you may find helpful. There is an organisation called The Brain Tumour Charity that I'd suggest getting in touch with when you feel ready. They offer various sources of support, including having a team that specialises in helping children and families. 

    Macmillan has a team that can offer financial and benefit advice. It's certainly worth getting in touch with them to see if you can gain some financial support to ease some of those concerns, particularly around work and income. 

    I don't want to overwhelm you with information but I did also want to give you a link to an organisation called Maggies. If you have a centre near then do keep them in mind as a great source of support. 

    Undoubtedly there are going to be some difficult times ahead Christopher12321. Please know that the Cancer Chat community is here to listen and we will do our best to offer any help and support we can. If it would help to talk with our nurses at any point you're welcome to call them on 0808 800 4040, Monday to Friday 9am to 5pm. 

    Sending you all my very best wishes, 
    Jenn
    Cancer Chat moderator