Hi catelyn thankyou for your reply. We found out about all this sometime last year. She has melanoma it has spread to her lung liver kidney and spleen then we found out today (18th March) that its also spread to her brain. She has a yellow folder and there a green card in it with a emergency phone number which we can ring 24-7 I rang it a about a week ago because with her having a low kidney function she has quite a few spots and they were sending her mad because nothing would stop them itching so the came and checked her out and told us to get her some antihistamines for them the I had to call them again on the 18th march because she had a headache and nothing seemed to sort it out they came again and gave her something to help her. She very emotional ageted and angry no matter what anyone did for her she was getting angry with them my 6 year old granddaughter was creaming her feet for her and she got really angry with her so I had to take over from her. She was quite upset because her great nanny got angry with her. For a 6 year old she understands that her nanny is very poorly and what is wrong with her so after we explained to her that it was just been of her illness she understood. She's now had 3 injection to try and carm her down and relax her but they have not worked at all. She hasn't slept properly now for over 3 weeks. We've asked them what stage cancer she has and they said with the cancer she has its hard to say with it spreading like its doing. We have the end of life carers coming in for her 4 time a day and she now has night career's also. We have been told that we have to stop doing everything for her because she is not using her muscles or her brain because we are doing to much for her. And when it gets closer to the end we will all be to warn out to be there for her. I'm sorry to hear about your problems as well and you no exactly what we are going through. 

My partner's mum was ringing us all up 5-6 times a day crying for us to go down because nobody  was there or nobody was coming out to see her but we knew that the carers were coming out for her. But we still went down to her. But now that has been stopped by the carers. We are only supposed to go down like a normal family to see her not anything else. It nice having someone else to talk to who knows what it's like and knows what we are going through I really do appreciate it. Take care and look after yourself