Palliative chemotherapy

My mum was diagnosed with secondary breast cancer in January 22, after having it originally in 2018. She was given a 1-2 year's prognosis.

We have been told that it's impossible to cure the cancer this time so she has been on chemotherapy for the last year as a solely palliative treatment. We have been advised that she can stay on the treatment for up to 2 years as long as she is handling the effects of it and the tumours aren't worsening.  Fortunately she is a trojan for her sprightly 79 years and, despite hair loss and the odd occasion of tiredness and nausea, she is coping brilliantly.

However, we can't seem to get a straight answer as to what happens in January 25 when essentially she will have had her 2 year's maximum of treatment? Will things just then go downhill? Will she rapidly feel unwell? So far, even though we are just over a year into her 1-2 year's prognosis she feels well. We joke that she's actually faking it as she doesn't really feel ill at all. And apart from having no hair she looks well and is still active.

Can anyone highlight what we could expect?

Parents
  • Hi WPETT,

    A very warm welcome to our forum.

    I am sorry to hear of your Mum's prognosis and know just how difficult this is. I lost my own Mum to secondary breast cancer, which had spread to her brain, bone, liver and lungs.  She was diagnosed with primary cancer 12 years before this. Unfortunately, this happened 26 years ago, when there was no treatment available for her. Treatments have come a long way since then and we now have palliative chemo available. I am so glad to hear that this has already given you an additional year with your Mum and hope that it can give you both more time still.

    As our moderator, Lucie, has said, the prognosis is "just average numbers" and at best a "guesstimate" of how long she has left. Whilst some people have gone sooner than this, there are many who have lived considerably longer. I do agree that it would be worth speaking to your Mum's care team, to see if there is any way that her chemo can be prolonged after 2 years, or whether there are any alternatives after that. I am so glad to hear that she has been coping well with her chemo and that she is not feeling ill at all. The most important thing to concentrate on at present, is in trying to make memories whilst you can. These are what you will hold deep in your heart, long after your Mum has gone.

    My thoughts and prayers are with you both.

    Please keep in touch. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thank you. We are indeed trying to make memories this year. We have 2 separate long weekends away planned. And last year we had a week in Scotland together; somewhere she had never been which was lovely.

    I will see if I can get a more helpful answer at our next oncology review. Xx

Reply
  • Thank you. We are indeed trying to make memories this year. We have 2 separate long weekends away planned. And last year we had a week in Scotland together; somewhere she had never been which was lovely.

    I will see if I can get a more helpful answer at our next oncology review. Xx

Children
  • Hi WPETT,

    I am glad to hear that you are trying to make memories. While she is well enough, this is also a great way of taking your mum's mind off all that is happening with her cancer. Do you have a date for her oncology review yet? You will find it helpful, if you both sit down together and draw up a list of any questions you have before this and write them down. I always do this before any appointment and take 2 copies with me - I give one to my hubby and, as I ask the questions, he writes down the answers. This should ensure that you don't forget to ask something important.

    I hope that you get some answers soon.

    Please keep in touch and let us know how you get on. We are always here for you both.

    Kind regards,

    Jolamine xx