How do I help my husband to stay motivated to be active

Hello

I know and my husband knows that keeping active is absolutely key to maintaining his quality of life and keeping as much independence as he can, but he has had repeated hospitalisations and, after each, it is a real struggle to motivate him to build his activity levels again. He is always up and dressed in the mornings, which is great but there are days when he just wants to come downstairs and then recline in his chair all day and I feel that I am nagging him to sit up, take some deep breaths or do something other than doze. The trouble is that the less he does the less he wants to do, and, very quickly, the less he is able to do. I understand how difficult this is for him, and I understand his frustration, but I also know how much his mental health is tied into his being able to maintain some basic activity.

Selfishly, I feel that when he has these phases, my workload increases as if he doesn't stay active or put in the effort to rebuild his activity levels he quickly deconditions and can walk less far without becoming tired and breathless which leaves me pushing the wheelchair more :) .

More seriously he risks fluid on his lungs and other complications. He is terminally ill but on active treatment which, against the odds, is working well, I know that I must lose him but really don't want that to be hastened. Plus if he has an " I'm comfortable here  (dozes off again)" day, it easily becomes a pattern, also on those days he eats and drinks less and, again, I feel I'm nagging as he has to stay hydrated and nourished, not least because of all the meds he is on and it's  a struggle to support him to regain lost weight after hospitalisation and to maintain his weight at a reasonable level.

Equally seriously, he wants to be at home and to sleep upstairs and bath and keep things  as  "normal" as possible and that means keeping his mobility as good as possible,

A pep talk from the physios works wonders but  they can't be doing that all the time and I can't be nagging all the time, and of course it is winter and hibernation mode is something many of us get into but this isn't just about outdoor exercise, just sitting up and standing up and pottering about does wonders.

Does anybody have any bright ideas?

  • Hi I just wanted to say that I don't call that nagging I call it caring and its exactly what I would do if I was in your position , he probably has a lack of motivation because of the way things have turned out but I fear things might get worse if not for you encouraging to keep going don't give up type of thing ,it can't be easy for you either feeling like you're nagging but knowing that its for his longer term benefit ,like you say the time of year doesn't help especially January (my least favourite month) if you can just keep reminding him that Spring is just around the corner and he needs to build his strength up before then so he can get out and about a bit more ,if he's feeling really low maybe a trip to the GP might be helpful to see if there's anything he can suggest for his balance of mood ,either way I sincerely hope things get better for you both so you can enjoy your time together ,I'm sure others will be on here to suggest things that might help as well ,always interested in how you get on x

  • Thank you, Jenny. I know that when he can be outside more, things will be better for him. I also know that he needs to maintain his current " frailty score" (3 , coping well) in order to stay on his chemo, It scares me that is at risk too. 

  • I didn't realise that bit about the chemo so yes I agree that makes it even more important to keep everything in place and get the right balance to keep it going ,I'm not surprised you're scared who wouldn't be each day is a challenge but its also another new day and things could get better ,I agree its very important to spur your husband on I'm sure deep down he appreciates it ,I was just reading a couple of posts on here yesterday and the people were saying they were totally alone with noone to help them so your husband is very lucky to have you .

  • We are lucky to have each other. It is a new day, the sun is shining and, hopefully, t will be a good day for him, (and for you Jenny).

  • I went through this with my wife for a good year. She too was in and out of hospital during her treatment due to the effects of chemo.

    What i will say, the following days after each treatment, i left her be because that's when the effects of her treatment were at their worse, and no amount of badgering will change that. But come the second week, i had to keep on at her to at least attempt to get out and about. We are relatively young (she was 50) in the grand scheme of things, and fit. So we aren't talking about someone who was infirm or in their late 70's or 80's before all this.

    There's so many variables to take into account. Her medication, when not landing her in hospital, played havoc with her sleep. She suffered badly with insomnia, so she was shattered more often than not. But she still needed to get some fresh air. I didn't find any magic bullet to get her out other than to keep on at her on a near daily basis. You could see she was irked by it all at the time, but she now says she understands why I would do it. We're very lucky as we stay right on a the beach front, so 1 min from our door step was the promenade here in Edinburgh. Having no travel requirements helped in that respect. Each time she did go out, she enjoyed it. I think it was just the thought of getting ready and going out that put her off. Having no hair didn't help either as she was low mood wise because of that too. But it was during the winter months, so wearing a woolly hat didn't look out of place.

    But i won't lie, it wasn't easy at times and I was beginning to annoy myself with my constant nagging. I think there's a thin line between what people find supportive and them thinking you're being extremely annoying.

  • Thank you. I too let him rest when the treatment or the disease is impacting him badly. But his oncologist and physios have made it very clear that he needs to keep as active as possible and that some of that activity must be weight-bearing (walking) and that he needs to use the stairs a few times a day.  I have just managed to get him to agree to sit up, stand up and do some breathing exercises every half hour ( and yes I will go through and prompt him to do so ) and to consider getting into the fresh air (well wrapped up) even if that means my wheeling him rather than him walking. He is finding me extremely annoying. 

    You sound like you live in a wonderful place! We are right out in the country but I am determined that a stroll around the garden or a wheel/stroll down the lane will happen while the sun shining today.

  • Well, his chemo has been paused until he rebuilds his activity levels, which will be reviewed next month. Hopefully, this will act as a motivator, it's also scary, the chemo has been working well, and taking a month off , whilst obviously needful, is worrying.