Hi Laura,

I am so sorry to hear that things have been so bad for both yourself and your daughter. Having all of these additional scans is always a worry, but just remember that it doesn't mean that her condition is any worse. They are just struggling to find the primary source, which can often be difficult to trace. I know that it feels as if all these tests are taking forever, but it will be worth it if they can trace the primary. The wait shouldn't prejudice her chances, but give her a better chance if they can target the cancer with the right chemo.

I hope that they can find some answers from the MRI on Sunday. They may be going to do a slightly different MRI, possibly with contrast dye, which might give clearer images.

I am thinking of you both and hoping that you feel a little better soon.

Regards,

Jolamine xx

Hi Jolamine 

I hope you are well.

Thank you for your reply I always feel.so much better when I write to you and u are always so helpful.and so loveky with your replies .

We had some more news about Emma today they said that they may have found the primary and that it may have started in the binary liver ducts...I think that's what they said...they are having to.do another biopsy as they have run out of cells to test..they are also doing a scan on her shoulder in case it started there as this areas showed up on her PET scan . .  They did another scan last Sunday and they said the mass has grown slightly but not exploded ...

She has been pulled thru the mill and has been so brave and at that same time running a home and looking after her three children.. I feel.so helpless ATM with my fractured leg and not being able to do anything.

I feel a little better today and so does she

Kind regards

.Laura xxxx

HI Laura,

This news sounds more reassuring. I do hope that this is the primary source and then they can then start to treat Emma. She must be finding all these tests so hard, when she's not been getting the answers, that they're looking for. I shall say a little prayer tonight that they have finally traced the primary.

I am sure that Emma understands your situation, Do you have any other family or friends, who can help out in the meantime?  It's probably when she is having treatment, that she will most need your help and hopefully you'll be on the road to recovery by then. How is your leg feeling now?

I am glad to hear that you both feel a little better today, and I hope that more good news will follow.

Kind regards,

Jolamine xx

Hi JcJl thank you so much for your message its made me feel very positive.

I'm so glad your sisters chemo went well and she is doing well ..

My daughter has a wonderful oncologist and is on her third round of chemo and immunotherapy. She feels unwell after treatment but keeps going bless her ..it's so hard for her trying to bring up her three children. I help where I can but I work full time which makes it hard 

I pray every day that the treatment will shrink the chemo. 

Please do keep in touch and let me know how your sister is doing ..take care ...Laura xxx

Hi Laura, 

I hope you are keeping well. How are things with your daughter? I hope she’s managing to keep well during her chemo. My sister felt better for eating well but simple foods, nothing too rich, she also went out for daily walks, the fresh air and being in nature helped . 
She’s now finished her 6 months of chemo and is having a 6 week break before immunotherapy. She’s using this time to really take care of herself and live life to the full, she has complementary therapies and eats a healthy diet as well as gentle exercise such as walking and yoga. 
I wondered if your daughter has had molecular profiling which can identify the specific mutations to prescribe a targeted therapy? 
Make sure you take time out for yourself to keep you well, take care, JC xx