Not allowed to go to treatment with mum

Mum is due to start Folfirinox next week and they are not allowing patents to have someone with them.

My mum is 76, she was referred for onset dementia early Feb, has hearing problems which she is supposed to be getting a hearing aid for unfortunately, she had an appointment for this in May which we were away for and a re-booking in August which again we were away for. 

She cannot hear what people are saying, forgets very easily and also goes in to a panic mode where she can't take information in. I take in all information for her and relay it in different ways to try and help her understand. I have to repeat information constantly and in different ways depending on how she is each day.

I explained this on the call but was told that since COVID they are not allowing anyone to accompany patents. I am so anxious about her going there alone and later in the day after telling her she started to talk about not having treatment at all.

I rang our care navigator yesterday to express my concerns and she is going to try and push to allow me to be with her for at least the first treatment. 

Has anyone else had this issue or is it just our hospital? 

Parents
  • Hello 4naan,

    I'm sorry that you're having difficulty being able to accompany your mum for her treatment. I do hope this is possible and that the care navigator can make this happen. I'm sure other members with similar experiences can reach out to you. It's also important to look after yourself and have moments to yourself, however small. There is some advice here, which I hope might be useful.

    Best wishes to you,

    Moderator Anastasia

Reply
  • Hello 4naan,

    I'm sorry that you're having difficulty being able to accompany your mum for her treatment. I do hope this is possible and that the care navigator can make this happen. I'm sure other members with similar experiences can reach out to you. It's also important to look after yourself and have moments to yourself, however small. There is some advice here, which I hope might be useful.

    Best wishes to you,

    Moderator Anastasia

Children
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