Brother was diagnosed with colon cancer

Hey internet strangers,

I feel like here is a good place to let my heavy feelings out into the world. Maybe sharing them here can expose me to critical information from other people's stories that could help my brother fight cancer.

The story is this:

About several months months ago, my brother who's only 36 years old had started feeling pain in his stomach. He's a fit man who regularly exercising and healthy overall. After going to the hospital he had a cyst drained and released home. They even took a CT scan for the stomach back then and didn't detect anything but the cyst. Over the following couple of months he's been experiencing tolerable pain in his stomach which at first thought to be from the cyst drain procedure.

Fast forward to now, he had a CT scan and had biopsies taken from abs and colon after his colon was blocked during an exam. There seems to be 2 tumors, a main tumor in the colon area which I think is around 4cm, and one in the abs area which is like 2.5cm. I'm not sure but it seems to be stage 3 or 4.
His liver and lungs seem clean after scans, hopefully it's a good sign.

My family don't have history of colon cancer, and this all came as a shock to us and we're still overwhelmed and don't know how to act really much.

We're currently waiting for the final diagnosis to determine the treatment strategy.

I feel like sharing it here to get it off my chest and perhaps receive information that could help my family and my brother win this war. Hopefully even hear success stories that defied odds and what might have helped win this war.

  • Hello qainzardo

    I'm so sorry to hear about your brother's diagnosis. It's understandable that you're worried and feeling overwhelmed by things. 

    It's good to hear that the scans haven't given any cause for concern about your brother's lungs and liver and hopefully, this will mean that more treatment options will be available to him. 

    We know that for many people this period of uncertainty and waiting for news can be difficult. Have they given your brother an indication of when he may hear some more news? Hopefully, it won't be too long. 

    If it would help you, or your brother, to talk things through with someone you're most welcome to call our team of nurses to talk things through with them. I know they will be happy to listen and offer any advice, information, and support they can. If you'd like to talk with them they're available Monday to Friday 9am to 5pm on 0808 800 4040. 

    Keep in touch and let us know how things are progressing. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi qainzardo,

    Sorry to read about your brother’s situation, the chances are that when the first CT scan was taken the tumours were too small to be detected. 

    A cancer diagnosis is never great but his youth and fitness are positives. When diagnosed at Stage 4 in 2013, I was told that my relative youth (55) and fitness would enable me to endure the planned chemo. Fortunately, that proved to be true.

    Good luck

    Dave

  • Thanks for the kind words.

    This coming week my brother's is gonna meet up with an oncologist and colon cancer specialists to come up with a strategy.

  • Could the tumors be that small in a about 4-5 months difference?

    I'm happy to hear you defeated cancer man! Was yours also colon?

    Thanks!

  • Oesophageal. Thanks.

    It depends on how fast they’re growing. They may take a series of scans to estimate the growth rate 

  • Hey guys,

    I wanted to give a small update on the situation.

    Currently I'm terrified after reading poor prognosis on google, and I feel like sharing here can help.

    My brother is diagnosed with colorectal cancer that has spread to the peritoneal area. PET-CT scan shows no other organs involved. 

    I also read that the cancer type is poorly differential which I heard isn't such good news, but still there's hope.

    After meeting an experienced oncologist surgeon, he's having to prepare my brother for HIPEC surgery.

    I know prognosis isn't bright for peritoneal cancer but I also read success stories from HIPEC and that technology and treatment is progressing.

    Chemo should start next week.

    I'd appreciate any information and feedback from you guys. Take care!

  • Hiya, and sorry you have found yourself here.

    My wife was diagnosed with breast cancer just over 2 years ago. The thing you've got to take onboard with what you read on the internet, some of the information is almost always out of date. The way it works, what you're reading is from around 5 years ago. It's how they come up with their 5 year prognosis thing. Anyway, when my wife was diagnosed, there were treatments that weren't mentioned on the internet much. I know one of the treatments she had, had only came into service so to speak, 6 months prior to her diagnosis.

    I know it's not much comfort at the moment, but try not to read too much into what you read elsewhere. What matters is what's available now, and the only place that information can be gotten is from his treating doctors. I'm not saying all of the above is true in your brother's case, but more often than not, there are new statistics and treatments available.

    Most importantly, every individual has their own set of unique statistics. The information you're reading about is a generalisation, so don't go having him dead and buried because of what you've read elsewhere. Also, that information is most probably derived from people at least twice your brother's age. He has age and fitness on his side. Not saying it will be a walk in the park, it isn't, but hear what the doctors have to say before freaking out. We initially freaked out too, but here we are two years later and she's currently classed as no evidence of disease/cancer free. Everything we read stated that probably wasn't going to be the case. We weren't lucky, we simply read old information. In a few years time, the full treatment options my wife went through will probably be readily available online. Which by then, something else will probably have improved again.

  • Thank you for your words, I'm glad your wife is doing better!