Hi All,
Just wanted to drop by and ask about other carers experiences of Glioblastoma. My best friend was diagnosed in February when she experienced what we thought was a stroke. Days later it was even worse than we first thought when she was told she had the most aggressive form of brain cancer. She underwent three weeks of radiotherapy and two rounds of chemo. Unfortunately when we saw the specialist, we were told the chemo had little to no effect. My friend has no family in this country as she is originally from Australia so the fact that we have been neighbours and best friends for thirty years the caring is left to me with some help from another neighbour. To make things worse can things be any worse I ask myself) she has diabetes and out of control Crohns. We have a nurse coming in twice a day now to do her jabs which I had been doing for four months but the hospice and myself were not happy with that arrangement as being on on steroids which increased her blood sugars, the upping and reducing of insulin was way above what I felt comfortable doing.
Her symptoms are loss of dexterity in her left arm/hand, speech and memory problems plus tiredness. I fear for the coming months. She beat cancer once before but we know she isn’t going the beat this one. She wants to stay in her home for as long as she can but I worry something is going to happen when I’m not there. Today she fell out of bed while she was taking a nap and was able to get to the phone but only after being in the floor for nearly half an hour. My husband and I were able to lift her up but it took several goes.
Well that’s my introduction and would love to hear from anyone who is experiencing similar.
Pipscat. x
