Caring for Friend with grade4 Glioblastoma

Hi All, 

Just wanted to drop by and ask about other carers experiences of Glioblastoma. My best friend was diagnosed in February when she experienced what we thought was a stroke. Days later it was even worse than we first thought when she was told she had the most aggressive form of brain cancer. She underwent three weeks of radiotherapy and two rounds of chemo. Unfortunately when we saw the specialist, we were told the chemo had little to no effect. My friend has no family in this country as she is originally from Australia so the fact that we have been neighbours and best friends for thirty years the caring is left to me with some help from another neighbour. To make things worse can things be any worse I ask myself) she has diabetes and out of control Crohns. We have a nurse coming in twice a day now to do her jabs which I had been doing for four months but the hospice and myself were not happy with that arrangement as being on on steroids which increased her blood sugars, the upping and reducing of insulin was way above what I felt comfortable doing. 
Her symptoms are loss of dexterity in her left arm/hand, speech  and memory problems plus tiredness. I fear for the coming months. She beat cancer once before but we know she isn’t going the beat this one. She wants to stay in her home for as long as she can but I worry something is going to happen when I’m not there. Today she fell out of bed while she was taking a nap and was able to get to the phone but only after being in the floor for nearly half an hour. My husband and I were able to lift her up but it took several goes. 
Well that’s my introduction and would love to hear from anyone who is experiencing similar. 
Pipscat. x

  • Hello Pipscat

    I'm sorry to hear about your friend's diagnosis. Undoubtedly caring for anyone who has cancer can be difficult but when support is limited, such as in this situation, I'm sure that it's more difficult for you all. It's understandable that you may be feeling worried. 

    It's good to hear that there is some daily input with a nurse and I'd really encourage you to talk to them and be honest about your concerns regarding caring for your friend. Do mention the fall as well as there are things that can be put in place to mitigate these risks such as bed guards and alarm systems. The nurse should be able to arrange for the appropriate local agencies to deal with this. 

    Hopefully some of our members who have cared for loved ones will post to share their experiences and advice with you but in the meantime, you're most welcome to chat things through with one of our team of nurses. They're available Monday to Friday 9am to 5pmon 0808 800 4040 and I am sure they will be happy to offer any advice and support they can. You might also want to have a look at the website for The Brain Tumour Charity

    I do hope that you're able to get some additional support for your friend and to give you some peace of mind as well. 

    Best wishes, 
    Jenn
    Cancer Chat moderator