Carer concern on right way to help my mum

My mother is 87 and has stage 4 kiidney failure, congestive heart failure, diabetes . peripheral vascular disease and a crop of basal cell carcinomas. She is very frail. But she's still a warrior mum. 

 It's thought these are the legacy of aggressive radiation treatment after a radical mastectomy at the age of 32 - the treatment was found to have dmaaged her heart. 

 However,  she's now 87, and had not reported the cancer until a year after she found the lump and when it become painful, for fear of what dad would say at having to take time off work - it wasn't a happy marriage. 

 Fast foward to today, and two basal cell carcinomas have been removed - one wound much slower to heal than the other because of its location, her shoulder, and the fact she's either sitting or laying down for much of the day. 

 A third has been found on the site of the drainage hole for the cancer all those years ago.  She couldn't understand why it had never healed. 

 Because of her poor healing these days the specialist prescribed Aldara initially - and I've applied it meticulously, to the letter, along with my other caring duties re pressure sore avoidance,  leg ulcer after a really deep cat bite in 2020 and incontinence issues. 

The aim was to avoid surgery.  Sadly , the Aldara provoked quite a reaction and the site bled profusely. When you contact dermatology they recommend putting a light gauze dressing over the site at night - but gauze soaks through fairly quickly and it can also stick to the wound .  Once again, I had to call the clinic several times for guidance and eventually turned to our community nurses who said they couldn't do anything without a referral (they had one for the shoulder BCC) but expressed concern at the wound possibly 'fungating' and recommended I contact the clinic again. 

I did yet again, was finally told to take my mother in - and they applied a wound dressing and advised me to call the wound care service (which is run by the  extended hours team) in four days time and attend the clinic closer to our home.  There a nurse applied a new dressing and suggested I apply hydrocortizone cream , 1 per cent , twice daily.  The pharmacist expressed misgivings when  I said what it was for. 

The wound is still bleeding. The leaflet states not to be used on an open wound. The BCC is still there.  And if it's applied twice a day that's repeated reapplications of dressings - I've been supplied with Cosmopor E to be applied straight to the wound. I've gone through some really difficult times, as a carer,  with my mum's recovery from certain procedures or problems, and I sometimes feel medics just think "oh her again" when I contact them but I don't want to make things worse.  The very first basal cell wound site became infected and again everything had been done to the letter. I don't take risks with my mother. 

  • Welcome to the forum Janarchy although I'm really sorry to hear about your mum. It sounds like you have both been through so much together and this current situation with her third BCC must be very stressful. 

    Unfortunately I can't offer any advice but our team of cancer nurses may be able to help so if you'd like to have a chat with them about this they're available on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. 

    Hopefully some of our members who have been in a similar position will share their thoughts and experiences with you soon as well but in the meantime, we're thinking of you both and will have our fingers crossed the wound starts to heal soon.

    Kind regards,

    Steph, Cancer Chat Moderator

  • HI Jenarchy,

    Your mum sounds like my mother-in-law, who was also a true warrior. Sadly, we lost her at 93 after a long battle with her skin. We tried Aldara with her too and she had a terrible reaction. It wasn't until later that we discovered, that this should not be applied to broken skin and it could cause considerable skin irritation if used for too long or applied too generously. There are a number of sterile gauze dressings, which have a film on one side and don't stick to the area as much as plain gauze. She should have been given some of these.

    Surely you shouldn't have to take your mum to the clinic, with her state of health? The nurses should be coming out to her. With lesions like these, the medication or type of dressing often needs to change from time to time and this needs careful professional monitoring. The fact that she is having problems with healing is certainly not your fault. It sounds as if you are doing all that you possibly can. These are always difficult lesions to heal, especially in the elderly with frail skin. Her peripheral vascular disease will also be slowing down the rate of healing, as will previous radiation damage.

    It sounds as if it is time for you to have a talk with her medics again. You are certainly not being a nuisance, but naturally have your mum's wellbeing at heart. This needs to be professionally dealt with by someone who is conversant with wound care.

    I sincerely hope that you are more successful in your quest.

    Please keep in touch and let us know how you're getting on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thanks. Steph - that's great peace of mind. Lovely response from Jolamine, too. 

  • I called  dermatology clinic and was assured that hydrocortizone 1 percent was safe for use on the wound as the dose is so low. I'm still concerned. I applied a low adhesion dressing three days after attending the same day treatment centre, over a non stick barrier and am hoping it improves with the next change.  But I've been here before and as you PVD doesn't help healing - nor does this that and other red and white cells and platelets and heaven knows what going haywire because of stage 4 kidney failure.  Community nurses have a duty of shared care with me over the leg ulcer and pressure sores if it gets too much or too worrying but would need yet another referral for this - and told me it was not really within their realm of expertise because of the risk fo the bcc fungating.  (which spell check keeps changing to fumigating!)  That's when it gets exhausting - the to-ing and fro-ing.  The marginally better news is her renal consultant has asked GPs to refer her to the community frailty team.  And we hopefully see him or have a phone consultation later this month.  Things complicated by a succession of very low BP readings and then conflicting advice re which BP meds should be dropped or tweaked.  Just managed to get that sorted, I hope, today. The next dermatology clinic - for removal of the basal cell carcinoma - is early Oct.  I hope things go right, rather than wrong, in that time.  Meantime, thank you so much for taking the trouble to reply, and highlighting some positive action.   Can't thank you and moderator Steph enough.  xx

  • ps I did actually use a shiny side gauze dressing  - which actually helped reveal how much the wound was bleeding beneath.  Sometimes a picture can speak a thousand words with medics. 

  • Hi Janarchy,

    It is always a good idea to take pictures for her care team - this adds so much more weight to any concern you may have. This is ridiculous. If this is not within the realm of the community nurses, how in heaven's name are you supposed to be able to prevent the bcc from fungating? It sounds as if you are getting the run around and need to go higher up than the nurses. Talk to her GP, or care team at the hospital, and ask for a competent wound care nurse to visit. Are you being prescribed the sterile dressings? You shouldn't have to buy them yourself. Once you are in a shared care with the nurses, you certainly shouldn't need to be re-referred.

    Make sure that you mention your dilemma re her leg ulcer and pressure sores, when you talk to the community frailty team too. I am glad to hear that her BP medication had been adjusted today and I hope that the readings will improve now.

    Please let us know how your mum gets on.

    Kind regards,

    Jolamine xx