How to, nicely, limit visitors

Hello

Don't want to give too many details but I am feeling a little overwhelmed by support and kindness, not only from the hospital and palliative care team and from family but from friends and colleagues. Since we shared the news of my partner's diagnosis it seems that I spend half of my life making tea and fielding sincere and well-meaning offers of help and support and dealing with other people's emotions. The phone never seems to stop ringing and people keep arriving and I sort of need a bit of time and space to process my own response to going from working full-time and then some to being on indefinite leave from work and becoming a full-time carer, and from looking forward to a shared retirement to realising that, in all probability, we have months, not years left... all in the space of a few weeks.

Many people are being great and phoning to see if they can visit and I thought I had it sorted but there have been times this week when one " booked" visitor has turned up at the same time as one, two or even three other  " so sorry to hear your news is there anything we can do to help?"  visits.

It feels so very selfish of me to be reacting in this way and I genuinely appreciate all of the care and concern but I also think we need to find a nice way of gatekeeping a bit. as my partner tires very quickly and needs some space too ( as does my freezer as so many people are bringing food, which again, is lovely but...)

Does anyone have any useful advice on how to navigate this without upsetting people who genuinely care and who mean so well?

Parents
  • Hello, I read your post with a massive sigh of relief.  Altho I have no advice for you I am keen to see replies to your post as I am in a very similar situation.  My husband has been terminally ill for over ten years and has defied all medical odds.  However, just recently the cancer has taken hold and his symptoms seem to be worsening on a weekly basis.  Having had so many near misses in the past, I am struggling to process that this time it's for real and just want some time and space away from people to allow my thoughts some freedom to breathe.  I haven't actually told many people yet as I feel totally overwhelmed by just the prospect of the deluge of sympathy and support.  I feel selfish and ungrateful for keeping people at bay as I know I have to allow them in to show they care....I'm just dreading it.  Thank you for your post, at least I know it's not just me....I know people mean well but already the constant asking how I am seems a ridiculous question at this time and it's exhausting constantly reassuring others I'm ok.  I hope you find a way of creating just a little space for yourself and a modicum of control in a situation that is way out of our control...you have my empathy and kind thoughts.

Reply
  • Hello, I read your post with a massive sigh of relief.  Altho I have no advice for you I am keen to see replies to your post as I am in a very similar situation.  My husband has been terminally ill for over ten years and has defied all medical odds.  However, just recently the cancer has taken hold and his symptoms seem to be worsening on a weekly basis.  Having had so many near misses in the past, I am struggling to process that this time it's for real and just want some time and space away from people to allow my thoughts some freedom to breathe.  I haven't actually told many people yet as I feel totally overwhelmed by just the prospect of the deluge of sympathy and support.  I feel selfish and ungrateful for keeping people at bay as I know I have to allow them in to show they care....I'm just dreading it.  Thank you for your post, at least I know it's not just me....I know people mean well but already the constant asking how I am seems a ridiculous question at this time and it's exhausting constantly reassuring others I'm ok.  I hope you find a way of creating just a little space for yourself and a modicum of control in a situation that is way out of our control...you have my empathy and kind thoughts.

Children
  • It sounds terrible but I am so glad that I m not alone in this. The pragmatic side of me feels that most of these visitors will drift away and that there will be many times when I wish there were more of them, but right now I just need to find a balance.

     

    And hats off to you, I have only been doing this "dance" for a few days, you have coped with ten years!

    Every best wish to you both x