I was very moved to read your story - poor you you've been through so much recently. I am so sorry to hear that your dad deteriorated so much in the last few months and on top of that your sister also battled TNBC and is in remission. The burden is really heavy on both of you and being your dad's main carers is bound to put a lot of pressure on you and your sister even though I am sure he really appreciates everything you do for him. It's good that despite all this you have a good relationship with your sister to help you get through these difficult moments - it's normal that sometimes you will have little disagreements about your dad's care but you both know that you are there for one another and determined to support him in the best way you can.
I am so sorry you feel the hospice is not giving you the support you need - it might be worth perhaps getting in touch with them and expressing your concerns, asking them whether they could help in any way. There is practical support available to you and your sister so you don't have to take all the strain on your shoulders. I thought I would share with you the information listed on our website on getting help and support when you are dying which mentions for example Marie Curie nurses who can visit during the day or spend the night to give the carer a break. You can find out more on the Marie Curie site and don't hesitate to call their free helpline for advice.
Our nurses are also available on this free number 0808 800 4040 - their helpline is open Monday to Friday from 9am to 5pm so feel free also to give them a call. It helps sometimes to talk things through with someone.
You are going through such a tough time and it might be worth talking to your GP about how you are feeling, how this has been affecting you. It is easy sometimes to forget amazing carers like you and your sister but it's really important to care for the carer and you can read more about this on this page.
I hope this helps a little and I will now let other members of our community who have been in a similar situation as carers come forward and share their story with you and their tips to help you cope during this difficult time.
We're thinking of you, your sister and your dad during this difficult time and wanted you to know you are not alone and that the forum is always there for you.
