I feel so sad, mum's cancer has spread to her brain

Hi everyone 

I really don't know what to say or where to begin but I do know I feel so sad and lost.

my mum my wonderful was diagnosed with oesophageal cancer with lymph nodes of the stomach being involved last August 2022. She had some palative radiotherapy and recently had a gastric stent fitted .

fast forward to 2 weeks ago and the cancer has spread to the brain (even though we were told 4 weeks ago by a consultant oncologist that this cancer does not spread to the brain). I  am angry that no one listened to me when I asked for a scan for her and told me it was not necessary!

my mum has gone to a strong willed , resilient and independent woman to a shadow of her formal self. Currently i am grateful that I can be around to support my mum but oh my goodness it's hard and I can't help judge everything by thinking is this the last time I do this or that for her . I am lucky to have time with her but I feel angry that my mum is slowing 'going' in front of my eyes .

i fee absolutely heartbroken and I know it's only going to get worse and I don't know how I can help myself let alone my family members .

I don't think any answers will help but just typing this down I hope will help !

lots of love

jule 

  • Hello Jule, 

    I am so sorry to hear that your mum's oesophageal cancer has spread to her brain - it must have been a shock to you and heartbreaking news especially if you were told that this cancer would not spread to her brain. I can understand your anger and frustration at being refused a scan at the time when you requested one. 

    It's so sad that your mum is becoming as you described it "a shadow of her former self" and I am sure she appreciates everything you are doing for her and all the support you are giving her during this difficult time. 

    I hope that writing here on our forum will help you process everything, as there is so much for you to take in and so much for you to have to deal with at the moment, that sometimes all you need is a moment to stop and write down some words in paper or on this forum. I just wanted you to know that you are not alone and that many members of our community will understand what you are going through having cared for a loved one with advanced cancer. They will, I hope, be along shortly to share their story with you. 

    We're thinking of you and your mum during this difficult time. 

    Best wishes, 

    Lucie, Cancer Chat Moderator