There are a number of posts on the forum where myelofibrosis is mentioned. However, I'm unsure that we have any members who are currently active who have experience with this diagnosis. If you'd like to read some of the posts where myelofibrosis is mentioned you can find them by using the forum search function (magnifying glass in the blue bar0 to search for this team.
We have some information about myelofibrosis on our website but I also wanted to give you the link to the information available on the Blood Cancer UK website. They also have a number of support options available. As a cancer-specific charity, you may be able to connect with others who have experience with myelofibrosis via one of those services.
If you'd like to talk things through with one of our nurses you're welcome to call them on 0808 800 4040, Monday to Friday 9 am to 5 pm.
