My dad has advanced lung cancer that has spread to his brain

Hi im just looking to see if anyone has been through what im going through right now just for more information and for me to understad more about how to cope. 

my dad was diagnosed in august 2022 with stage 4 lung cancer he had one dose of immunotherapy aound october and then in november he started feeling unsteady and that his legs wasnt moving properly. He then got admitted into hospital because of his symptoms and they done a MRI scan which showed up the cancer had spread to his brain and cause mets and swelling. 

He started steriods the highest dose and he was better for about a week then his symptoms came back again and long story short because the steriod dose couldnt be dropped they said theres nothing else they can do for him and that he should spend his time at home with his family. 

I have moved me and my two children into his house to look after him but hes gradually going down hill, every week is completly different. his memory is getting affected, hes on morphine for the pain, some days he acts like hes drunk and like he has dementia. Then other days hes back to his old self but completly worn out. 

If anyone is going through or been through anything similar please give me a message, Thank you.

  • A very warm welcome to Cancer Chat Sarah although I'm so sorry to hear about your dad.

    I can't begin to imagine how tough this must be for you and your children right now but I hope you can take some strength, and comfort, from joining our community and knowing that you are not alone. 

    I'm sure some of our members will be along soon to offer you their support and advice but if you'd like to talk any of this through with one of our cancer nurses, they're just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very knowledgeable and will do all they can to help you at this difficult time.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi 

     

    I am literally going through the exact same thing. Mum's lung cancer has spread to Brain. She is on steriods and in hospital . She is acting so strange and hyper and talking non stop. She has stage four lung cancer and fell last week . CT scans showed four tumours on Brain. Her personality has changed so much she is hyper and giddy and child like.  It's all so bizzare and frightening. I am sorry your going through this it's definitely not easy.

     

     

  • Hi I was having a read through some items on the forum and saw your post. I am going through a similar situation  just now with my Mum,she has very recently been diagnosed with small cell lung cancer which has mets in her brain and also other organs. Unfortunately  her cancer is too far advanced and chemo etc wasn't an option. If you want to chat more feel free to send me a message. 

  • Oh I know the feeling exactly it's horrible isn't it. My dad has days we're he acts asif hes drunk and does strange things. No it's not easy in the slightest but as long as we're there for them that all that matters right now.x 

    meesage me if you need to talk. 

  • It's heartbreaking isn't it I've never in my life felt pain like it before. I've found myself cutting everyone out my life and fully focusing on my dad and my kids cause there the only ones that matter right now. 
    thank you, your welcome to message me anytime too. 

  • I'm so sorry for what you are going through. My mum's breast cancer spread to her lungs and then brain. She was on steroids and had the same experience - she was hyper, child-like at times, constant stream of consciousness talking, sometimes had mood swings (uncharacteristically angry). It's exhausting and worrisome - try to take it one day at a time, will take patience. I got her to do some colouring books as a distraction at times. Tried to get her to nap during day as she wasn't sleeping at night helped a little at times to

    calm down. We eventually got dr to prescribe sleeping pill as thought she was delirious but they understandably are reluctant to do this given issues with other meds and risk of falls. She was calmer and more lucid in her last few days. Wishing you and your dad strength and peace 

  • Thank you for your reply. sorry about your mum its so hard to get my head round but i feel like im learning to come to terms with it all. I feel like im getting pre grief for my head to be able to cope with whats to come without hitting me like a tonn of bricks if that makes sense? 

    My dads had a good few days this week what has really cheered me up but i know the bad days will make a show again and puts a big knot in my stomach. But i suppose it is what it is i can only do my best to look after him and put a brave face on.