I've just had a quick look through the forum and found a post made about leptomeningeal metastases last year. You can take a look at that post just here, but apart from that, there unfortunately haven't been any more discussions about this on the forum lately.
I really do hope you're able to connect with others who have experience of this type of cancer but if you're struggling or would like to find out more about leptomeningeal disease then you're welcome to get in touch with our team of cancer nurses on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to help.
My fiancé has secondaries to his brain (melanoma left calf originally) He was diagnosed with Leptomeningeal to brain in November 22. He was given a few months at best.
He's lost use of his right side and having lots of heavy seizures it's difficult to see. I think time is catching up with him.
My son was diagnosed round about the same timeframe but he is not showing any of the symptoms, He is stronger now than when he was diagnosed, not seen any of those symptoms at all
