Confronting difficult truths

Offspring (early twenties) won't make old bones, now choosing to be either alone or with younger people, rarely socialising, can't drink alchohol because of chemo-agents, has issues with falling-out hair (low self-esteem over changed appearance), absolutely imperative avoid bugs, was on government shielding list, no chance of ever ringing a bell, this is best it gets ... horrid downward slide, can't make new memories since contact's become restricted. Doesn't want regular phone calls just occasional (once or twice a month now). "Why me? Why is life so unfair? Why have I had to suffer so much?"  I hear her pain, I empathise but I have no answers, cannot take away the pain. As meds become less effective/more toxic to a body that has taken so much, how do you begin to deal with this? I've offered to help out, move in ... Big mistake!! There is a desire to live an independent grown-up life ... I wonder if my (relative) longevity – am in my fifties – might be a source of pain even. It seems there is nothing I can do, except listen if asked. Please don't anyone tell me to go and see her, give her a hug because a) she hates hugs and b) she moved without telling me/sibling. I think I do finally get it, the need to have a cocoon, protect others even. I also understand this is not about me... If her life is to be so short – let it not be, please let it not be – she has a right to do whatever works for her, whatever makes life tolerable. But I am finding this situation extremely hard especially given other cancer losses I have experienced (my best friend died of leukaemia age 11). Has anyone else experienced a situation anything like this? How do you deal with it because I'm struggling?

  • Hi there ...

    Sadly there is no rhyme or reason with cancer and feelings .. I've been through the cancer personally and had so many with it too .. and I lost my 18 year old  granddaughter to acute myeloid leukaemia a few years... so know that heartache to ... 

    I found it easier dealing with my journey then seeing those I love go through it .. and being a mum, is the hardest job well ever have .. to hold them as babies and take them to their first day at school, and see them turn to an adult where we have little control is so hard .. 

    All we can do, is let them know wer here, and go at their pace ...  weather they choose to reach out, or cope alone ... I can only imagine what she's going through now on her journey... I think as a mum, it's our job to love unconditionally... that is being a mum ... it's a time when we can't fix things, like we did when they were young ... sometimes we have to take a step back while telling them wer just a step behind when they need us ...

    I only wish we could hear her thoughts ... and if she does open up, it sounds like she just wants to be heard not given advice ... as much as our hearts want that .. to stop them from falling like the toddler we helped learn to walk .. listen to your heart and head, and take one day at a time .. but remember, all our kids are joined to us from an invisible cord like the one when we carried them .. it never disappears..

    Sending a vertual hug... from one mum to another ... Chrissie x 

  • Dear Chrissie, thank you so much for these kind, kind words especially when you and your family have also suffered so much. I think you've got it spot on, she's openly said "don't try and fix it", fell out with a sibling (not even speaking) because sibling "didn't understand, had never had to deal with something so big, had it easy by comparison", sibling also undergoing cancer tests/treatment, doesn't have as many co-morbidities/risks, decade older, got own house (as opposed to rented), family etc. I've still got lines of communication and, as you say, all we can do is go at pace set for us. There comes a time when mums have to step back, allow our children to both live life as they choose and, where the life they would have chosen is unattainable, give them space to come to terms with that. When I try to think myself into my youngest daughter's shoes, I cannot imagine how she can bear things, be so strong... I really appreciate both your kind words and the hug, Chrissie. Losing a granddaughter so young is a terrible thing to have to bear. Cancer is such a horrid, horrid illness. Sending a virtual hug to you too, Chrissie. Thanks again, love Rose xx forgot to say I've got my own cancer and other issues too, the beast really won't let some of us alone, I push it to the back of my mind, but counsellor told me I got to find time to grieve properly too, some emotions are just terrifyingly hard to bear x

  • Hi ... your welcome ..just another thought .. when I got the words said to me... I had a grade 3 breast  cancer ... it echoed in my head .. to where I couldn't hear anything else said .. luckily my daughter in law took down notes ..

    For a while I locked myself up in my bedroom .. cryed / cussed and thought of all the things that where going to happen .. even planning my funeral ...  I shut everyone out ... then my wonderful daughter in law got me and son together .. she said right no more panicking.. no more 'what  ifs' .. no looking ahead .. well take every problem as and when it comes up .. and well do it together ...

    Well I snapped out of it .. I started to get my head around things .. the best advice I ever got .. but I must say .. everything around us when going through it is cancer .. life turns upside down .. it's like getting on the scariest rollercoaster ride ever... and not knowing when or if we'd get off .. extreme highs and yet plunging lows ... but on that ride are lots of us all going on this ride ... it's scary .. and sometimes admitting we are scared is hard coz those we love want to make it better ... and they can't .. but having a hand and being there means so much ...  

    We know others can imagine .. but untill they have had those words said no one really knows .. that's why we come on here .. others that know .. her siblings need to get together with you, and maybe read this to them to let them know a little how it feels .. and when your all on the same page you can help her together ... I found in the middle of my cancer .. I wanted somethings that where normal .. normal chat .. normal things in a world that is anything but " normal" 

    Just seen your on a cancer pathway to ... so dealing with both is overwhelming... but know your not alone ... yes take time for you too .. I'm 5 years post op .. and still standing as is my untie who got it a year after me .. so wer sort of "breast buddies"  you can do this .. I did ... x

    I'm always on here every few days .. I'll always listen to how your doing .. I can't take it away, but I can hold your hand through it if needed ... Chrissie x 

  • Hi Chrissie, you're right it's an absolute roller-coaster. I've given up trying to fix things between siblings, that's a job for people way more expert than me (there is an expert trying to sort the pyschology for one of them at least) ... maybe they'll sort things, maybe not, sometimes people just too different, even when related. Good advice to take things day at a time, not get dragged down by whirpool of confusion, grief and goodness knows what else, some days I feel like someone took hold of me, spun me round blindfold, threw me into a stinking pile of ... but I got to get up, wash it off, find some clean air, find comfort in small things, I'm not quitting no matter how hard life gets ... thanks again Chrissie simply for being there. It really, really helps! Love Rose xx