So after second opinion and all it is clear that we can't avoid the permanent stoma as they can not preserve my husband sphincter and it all has to be removed. The rectum and anus. He will have a permanent stoma - ostomy.
I watched videos of people changing stoma, read websites. I was thinking to maybe go for some online course for stoma care - what can I do as a helper? How will I be able to best support my husband on this difficult journey?
I am dreading the surgery and the recovery. Any first hand experiences would be amazing to hear at this point.
Thanks!