Glioblastoma stage 4

Hi,

My husbands dad (not biological but raised him since he was 7) was diagnosed back in December with stage 4 glioblastoma and was told he was looking at about 12 months, he had surgery and is due to have his last cycle of chemo next month, he then doesn't go back to see the specialist till December. 

We haven't been at his appointments as my husband is recovering from 2 brain surgeries and an abscess on the brain so my father in laws friend has been taking him (it's an hours drive away and my husband had his licence taken due to surgeries plus you can't have more than one, sometimes none at the hospital) so we haven't been able to ask questions and have only received second hand information. What happens now? Do they just finish treatment or will further treatment be offered after the 3 months off chemo? He has just been put under a District nurse. He is 78 and not great at passing information back to us, he is really positive and so far doing really well, he says he doesn't feel unwell and has even started pottering about on the farm again. I just want to know what to expect next, it's just me, my husband, our children and my father in laws friends that are looking after him but with my husband still in recovery I have to be the one holding it together but I am the sort of person that needs to be prepared, even though I know how hard the truth can be, I need to know what happens next. 

I know no two people are the same and that everyone's experiences are different but with the treatment all being the same, I am hoping for some insight as to what I can expect. 

Thank you

  • Hi Daisyban,

    Welcome to Cancer Chat. I'm sorry to hear of the situation with your father in law and also your husband.

    As you say, it's very difficult to advise on another person's care. It's really only those involved in the care who can do this, so perhaps you can try to have a conversation with your father in law's friend, if they were present at the appointments.

    You are welcome to give our nurses a call too, if you'd like to talk things through - although please note they will only be able to speak generally and not specifically to your father in law. You can reach them on 0808 800 4040 (Monday-Friday, 9-5).

    Wishing you all the best,

    Ben
    Cancer Chat Moderator