How to help when Dad seems to have given up

My dad has been diagnosed with tonsil cancer. When I went with him to the big appointment where the Drs. lay out the treatment plan and they expressed their aim to to cure him. He's having 7 weeks of radio therapy and chemo. 3 weeks in he's stopped eating and had seriously reduced his fluid intake, to the point that he collapsed from dehydration yesterday and had to be hospitalised. I went through his medications and he doesn't seem to have been talking them either. My mum and I and others around him remind him he needs to eat and drink but he doesn't. He has a PEG tube but is really resistant using it. He has visibly lost a lot of weight.

This is all made more complicated by the fact that his memory seems to have become really bad, to the point my mum wonders whether he's in the early stages of dementia. It's impossible for us to decide if he choosing not to engagement with the treatment, or is he incapable of remembering.
 

I have no idea how to navigate this. No idea how to help help. How much to try and where to draw my boundaries.

I am full of really big feelings. Frustration at his lack of action and rejection of help. Fear that he's just given up. Deep sorrow that my concern can't motivate him.

 

  • My FIL was similar to this although he had a stroke and no chemotherapy.  He had delirium and was not himself for about 6 months.  He had a gastrectomy and after 3 months his mind is better.  He doesn't like hearing bad news so we have chosen not to have any more scans.  I think he knows he probably won't survive his cancer but is getting through each day.  Its hard when it seems people give up or like my FIL they're not grabbing each day.  

    Just try and do what you think he would like to.  I always knew that if my FIL had a terminal illness I would try and keep that news from him. I know that sounds strange.  

    Good luck.  I totally understand your frustration so don't feel bad.  Take care 

  • Why not get your dad's GP involved, ask for a district nurse to visit him at home as you're concerned it's dementia, shock or similar and you need their help with this.  His hospital need to do his cancer care as specialised but his GP surgery can help with the medications and not eating or drinking, ideally to avoid him going into hospital again.

    It's great news thet they hope to cure him, take strength from that.  But it's important to be really well hydrated during chemotherapy and radiotherapy and be looked after properly.  Is it chemotherapy tablets he's to take or will he be getting it in by iv at the hospital?  Any idea yet?

    I'd sit down with your dad and try to gently get through to him that you know it's a seriously tough thing to go through but they can't help to cure him if he doesn't help himself.  If you can get him to see hope in that it's curable, that's half the battle.  Give him lots of hugs if he'll let you, he's probably scared.  You could phone the Macmillan cancer nurses for help too in case his throat is too painful for eating/drinking and for general advice.  We need to look after our bodies as much as possible going through cancer treatments.  Your body uses what goes in to help itself to heal so water most of all and lots of it with good nutrional food a close second.  Be there for him as much as possible and don't give up.