Glioblastoma stage 4

My beautiful mother was diagnosed with a stage 4 glioblastoma at the beginning of the year after having headaches for around 2 weeks. It's been a really difficult few months after diagnosis. We was firstly told that it was inoperable however she had a very steep decline and they came to the decision to remove a very small amount of the tumour to help prolong her life.

She has now completed 15 sessions of radiotherapy but unfortunately has just been getting worse, she is very confused, incontinent and poor mobility. We were hoping as a family we would have a month or so of her being better to try and make some memories but I don't think that's going to happen. She has another MRI scan next week and then a meeting with the neurologist and oncology. I'm just so worried she's coming to the end already. Can anyone help on dealing with grief before grief? I'm only 20 and my mother is 52 she's just so young and I can't even imagine my life without her

  • Hi Chappers, 

    I just came across your post and wanted to let you know how sorry I am that your mother has continued to get worse since finishing her radiotherapy.

    I can't begin to imagine how difficult this must be for you all and how upsetting it must be that your plans for making memories together may no longer be possible.

    I'm sure some of our members who have been in this position will offer what support they can and share their advice and experiences with you soon but in the meantime, I hope this article I've found about anticipatory grief will help you at this time.

    Also, if you have any questions or would just like to talk this through with someone then our team of cancer nurses are just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very supportive and will do all they can to help.

    We're thinking of you Chappers and wishing your mother all the best for next week.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph, 

    Thank you so much for your kind words in your reply. I think that number will definitely come in handy. Even just writing that first discussion made me feel better just getting all my thoughts out! 
     

    Thank you again, 

    Mia x

  • Hi,

     

    Im so sorry to read your post, my Dad passed away in September from this awful illness, happy too chat If you need me. 
     

    love Sarah 

  • So brave reaching out to talk about your family's situation! My husband keeps encouraging me to do the same, so here I am. My dad was diagnosed with glioblastoma in April. I would love to chat if either of you, Mia or Sarah, are up for it...

     

     Thanks for starting the conversation 

    Ada

  • Hi Ada, 

    so sorry to hear about your dad, my heart really does go out to you. If you ever want to chat drop me a message it would be really lovely to chat with someone that can relate <3 

  • Sorry for your loss. That would be really lovely thank you, I'm always up for a chat if you need one too! 
     

    love Mia x

  • Hi Ada,

     

    Your Husband is right, I wished I had reached out when my Dad was first Diagnosed unfortunately I didn't as I wa to scared to hear something I didn't want to hear.

    How is your Dad getting on? It's really tough, I know from experience but if you have lots of love and always have hope xx

  • Hi Mia,

    I am so sorry to read your post, have you spoken to your GP about your Mum getting worse? Maybe they need too alter her Medicine, you could also ring her team I am sure they will ups be happy to have a chat and maybe reassure you a bit. 
     

    Take each day as it comes, don't look to far into the future, my Dad was a bit older at 62 but I know how frightened you are. You must ask for the help and look after yourself. You will have too dig deep and be brave, you can do this. Thinking of you xxx