Hi All,

my gorgeous mum (53) has been diagnosed with Grade 4 Glioblastoma multi form. We were told last week that the tumour is now stable after chemotherapy and radiotherapy and we have now started a new chemotherapy plan. 
however, mum had a seizure last week, her first ever one and we had to go into hospital for a few days. The care at the hospital was shocking - didn't give her the right medication, just left her and basically made us do everything. Mum was only alone once during 3 days for 9 hours and during that time she had a fall. Anyway since coming home she's been okay but her headaches have gotten really bad and she's been spending most of the day in bed.

we know it's not the tumour growing because we've had two scans in the last two weeks which say we are stable. So I'm just not sure what's causing her headaches to be so bad? We've reduced her steroids very slightly but only by 2mg and she's been on the new dose for over a week now.

just not sure what to do because I don't want to push her in case she has another seizure but I also know it's probably not good to spend all day in bed. Has anyone experienced this or got any advice for pain relief we could ask the hospital about?