Hello HM74 and welcome to Cancer Chat.

I'm very sorry to hear your dad has pancreatic cancer and that he's having quite a difficult time with one of the side effects from the trial he's currently on.

Unfortunately I couldn't find anyone on the forum who is also on this trial at the moment but you may have more luck within the Pancreatic Cancer UK community. 

If either of you would like to discuss this further with one of our cancer nurses, they're just a phone call away on 0808 800 4040, Monday - Friday between 9a.m - 5p.m.

Whatever your dad decides to do, I want you to know we're thinking of you and wishing him all the best on this journey.

Kind regards,

Steph, Cancer Chat Moderator

Thank you Steph. I have posted in there too but no luck so far. 

I wish there was someone we could talk to with direct experience, but it doesn't look like there's many who have been in the trial.

I did find some study results online, suggesting my Dad is in the 5% who experience severe side effects. Again, I just wish we could talk to some of the 5% but it doesn't look like we will find anyone. It's frustrating because the results look really positive. 

Thank you again.