Anger with delay in diagnosis

Hi, 

I sat with my stepfather today on a virtual call with an oncologist who in my opinion dealt the killer blow we were expecting with absolutely no empathy at all. 
After a CT scan result late January revealed my stepfather has cancer of the pancreas which has spread to the lung we have just been left in limbo and dealt delay after delay.

My stepfather started to experience pains in his abdomen and back in August 2021, the pains ruined both of his holidays,  one in August one November. He had 4 GP visits between August and November 2021 and all resulted in him being sent away as having IBS and given different forms of IBS treatment each time. 
With him having previously had cancer 7 years ago he knew it wasn't IBS and just felt as if he was hitting his head against a wall trying to get referred for further investigation. 
Then it didn't help the booster jab campaign was rolled out and his GP seemed to only be interested in jabs at this time. 
Being the gentleman he is my stepfather was so patient even though he was suffering pain every day. He was doing the British thing and supporting the coronavirus programme trying to do his bit in helping the country beat covid. 

His pain was then becoming so bad after getting nowhere with his GP we were calling ambulances and going to A&E several times in December (each time being sent away) the GP finally sent him for a CT scan just after Xmas . We waited almost 4 weeks for the result and then received the devastating news of what they had found. 
it took until the 1st week in March to finally see an oncologist who has said my stepfather is now at a stage 4 and he only has months and the oncologist made it clear they don't really think they can help him. 

Can you help me understand how are we meant to suck this up without feeling bitter?

Had he not have been sent away so many times he WOULD have had a much better chance at treatment. How can we ever stop wondering what if ? Can anyone help me Deal with my anger and frustration?

We have been promised a pain block and still no news in this. We seem to have to chase for everything we are promised every time, he isn't eating much and seems to be finding it harder and harder each day to put up a fight feeling that nobody cares. 
 

I am not able to switch my anger off and am really struggling to help look after him and work full time. 

 

Thanks

  • Hello Lou

    I'm so sorry to hear about your Dad's diagnosis. It's perfectly understandable that you're feeling angry at the situation that you find yourselves in. You want to ensure that your Dad gets the best care possible and it's difficult to not feel angry when you have to chase and push for appointments and support at every turn. 

    In terms of the pain block that has been mentioned but not arranged, I would suggest getting in touch with the hospital PALS department. I would also consider contacting the GP practice manager, in writing, and advising them of the situation. Explain that your Dad has been left in pain and that you feel unsupported with a lack of care. 

    You might also want to think about giving our team of nurses a call for some advice and support. I'm sure they will be happy to offer any information they can to help support you in moving this forward to achieve better support for both your Dad and yourself. They're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    This is obviously a really difficult time for you both Lou. Please know that the community here at Cancer Chat is available any time you want to post, chat or simply offload in a safe space. 

    Keep in touch. 

    Best wishes, 
    Jenn
    Cancer Chat moderator