My husband was diagnosed with grade 4 brain cancer

My life is such a strange affair my husband had a craneotomy in which they removed 95% of the tumor .His operation was the 15th of November he came out on the 17th unable to wash shave dress and shower. I have parkinsons disease  and he was my carer .Life day to day is hard for me I understand the diagnosis but he thinks the chemo and radiotherapy is to kill the 5% i am glad in away but when he talks about our future retirement plans I find it difficult to keep from crying .I tell him he must go to bed for a sleep so that I can cry and rage at the world.Christmas seems wrong but grand children need  Santa. Does anyone out there feel the same ? Thanks Di 

  • Hello Di,

    I'm sorry to hear how you're feeling and I can't imagine how difficult it's been for you. It's important to look after yourself, especially during this time of year. I'm sure members on forum with similar experiences will reach out to you. If you need to speak to someone about your husband's next steps out team of nurses are available on 0808 800 4040. Just so you know, the helpline closes for Christmas at 5pm on 23rd December and reopens at 9am on 29th December. It will also be closed on Monday 3rd January.

    I hope this is useful in some way,

    Moderator Anastasia