Should it be me?

Hi all,

I was recently diagnosed with right breast IDC Grade 3 (aggressive). 1st Dec, I was told I need a second biopsy to find the nature of a small lesion which was hidden behind a 4cm tumor. My breast surgeon requested it as urgent and told me he would see me very soon for results where they would know the type, stage and what treatment to deal with it. 

I received a letter telling me to come to the breast clinic 22nd Dec. I thought this date was very far away for a 2nd biopsy procedure, but I was just glad things are moving. Since my diagnosis, I have experienced sharp stabbing like pains in the tumor area. I called my breast specialist today, who is absolutely brilliant!!!, just for advice. She was under the impression that a week had gone by and i'd already had my 2nd biopsy so, could I give radiology a call, mention its urgency and ask if I could have a date for a follow up biopsy as  22nd Dec is the date I go back to clinic for results.

I did as I was asked, to be told they are aware because it is on my notes as urgent, but there are no availble appointments (no matter how urgent!) 

Im obviously not going to refuse as I dont want to delay my treatment any further, but my question is....should it be me chasing the hospital for appointments? Is it my responsibility? But if I hadnt called today, my specialist would not have known and would have assumed Id already had the biopsy done, so she was glad I called on the off chance.

I have 15 days to 'play' with. Do I keep my 22nd Dec appointment? There will be no results to give. It takes around 2 weeks for results after the procedure.....but need procedure first!!!! 

Im not comfortable with all this especially since the word breast cancer and aggressive were used in the same sentence!

What do you think?

Would appreciate anyone experiencing the same setback or just some general advice.

Much love xx

Parents
  • Hello and thanks for posting, 

    I am sorry to learn about your recent diagnosis and that you are waiting for a second biopsy. I can appreciate that this is a stressful situation to be in.

    In an ideal world patients shouldn't have to have to chase up their appointments, and I am not sure if it is really fair to ask you, but it is probably a reflection of the pressure that the NHS is under just now.  I think you need to get back to your breast specialist, let them know what you were told when you called radiology, ask if this matters and what you should do about the appointment the week after next. 

    Waiting is seldom easy and I can understand anyone in this position feeling uneasy. I think the best course of action at the moment is to talk to the breast specialist and get their input.

    If you want to give us a ring to talk anything over please do, our number is Freephone 0808 800 4040 and we are around weekdays 9-5. 

    Best wishes,

    Julia

  • Hi Julia,

    I got in contact my breast specialist again and was told they would give radiology a 'gentle nudge', and it wouldn't do any harm for me to do so as well. They also said radiology may give me a call within 2 days (including today), and I would still have my results by the consultants appointment.

    Anytime after these 2 days, I shouldn't come to clinic, and another appointment would be made.

    My mind is at rest that they haven't forgotten me and have faith they will be in touch as soon as they possibly can.

    Thanks Julia x

  • Morning, 

    just checking in how you are and if you got that call back yet?  
     

    Mickey xx ️

  • Hey Mickey, (angel)

    Thank you for checking in on me. Im well and hope this post finds you well also.

    I got that call back this afternoon. They have cancelled my consultants appointment for 22nd Dec, and given me the same date, only its for the biopsy. Results are scheduled for 14th Jan, along with a plan (hopefully I sigh)

    Oh well, I suppose its a fresh start for 2022!! A bit of a set back, but I'm still feeling positive :laugh:

    Much love xx :love:

  • Morning Julia (angel too ),

    I'm glad you're feeling well and positive. I think it's good news that you will have your biopsies before Christmas. All considered the 14th won't be too long to wait after that for your 2nd set of results. Yep, hopefully your plan too, which always makes you feel better knowing you are on the route to ridding cancer. 
     

    I'm good thanks. Off for my covid test at hospital very shortly. I'm hoping that I'll get my post op results at about the same time as you get yours. I'm aware there may be a slight delay due to Christmas though. 
     

    Positively, you'll get your biopsies just before Christmas and then, like you say, nothing more until 2022, so you can try to put it to the back of your mind and enjoy Christmas. 2022 will indeed be a fresh start.
     

    Love n virtual hugs Mickey xx ️

  • PS: How are they doing your second biopsies, do you know? Mine were stereotactic, under mammogram? Xx ️

  • Hey Mickey,

    Im not too sure, nothing was said, so as far as I know, it will be like the first one. Needle core biopsy.

    As much as Im trying my breast (oops sorry) lol!! BEST to keep and stay positive, I feel as if my lump has grown to the stage where I no longer have to press into my breast to feel it. Although it can't be seen with the eye, It's nearer the surface, so can be felt if I was to point you to its direction.

    My surgeon says it won't spread by the time I have the 2nd biopsy and results, but that was before the set back I mentioned in my last post. It IS aggressive, so I can't see why it wouldn't. What do you think?

    Also, I've been reading about CT a d MRI scans that others have had before their ops. No one has told me I may have one/both of these. They tell me all lymph nodes are clear, (could this be why Im not having any of these done)? If I do have to have them, it will set me back even further as results take time.

    God loves a trier, believe me Mickey, I am trying to be Ms Positive Polly through this uncertain time.

    Much love xx :love:

    PS, hope you are well xx

  • Morning and happy Sunday, 

    Ok, I guess they just say 'biopsies' and unless you get a letter confirmation, you probably won't know.  Anyway, has to be done to get to the point of your treatment plan, which is good. 
     

    - I have to say that it's hard to resist when people keep telling me 'you got this' and I'm thinking 'no, I haven't, I'm just trying my breast - or in my case losing it'.... A sense of humour around this chaos is a must, I think. I'm not sure others outside this journey would get that though!

    I have to admit that I try not to look at that breast now and I haven't felt it for months (probably since they out the first markers in'). Like you though, I'm convinced you can see it now, but I think it's probably 'just my imagination, running away with me' (won't get that song out of ny head now. Lol). It's funny how our mind plays tricks on us though, so please try not to worry about that, you're in good hands. As for the aggressive bit, Please don't worry, it won't grow that fast that it will make any difference to surgical decisions whilst you await the second biopsies. Honestly, if they were worried about that they would have acted in another treatment before surgery. Im over three months down the line now and my tumour is invasive and aggressive and Im still holding on til Tuesday when all of the cancer will finally be removed (fingers crossed) x

    I asked about other scans at my second consultant apt (whilst awaiting the second biopsy results) as I was worried like you that there would be yet further delays.  I was told that the info from the second biopsies was all they needed to make a surgical decision to get me to surgery. So don't worry about that, I'm sure you're the same they know enough about your cancer and will know all they need to know after second biopsies to get you to surgery. I did have to have a CT scan to check my blood vessels because of my choice of surgery, but that didn't hold anything up at all. 
     

    You're doing well 'Positive Polly'. 
     

    much love Mickey xx ️

  • Hey Mickey,

    Happy Sunday to you too:laugh:

    You truly are inspirational!

    Here I am, going into a paranoid meltdown, and along you come like a breeze on a very hot summer day, to cool things down (just when its needed).

    For most of the time I am a strong minded person and nothing phases me. I have been good, laughing, joking and getting on with general things, including preps for Christmas, but suddenly all these questions came to mind, which needed some kind of clarity in any form, but I couldn't find them on the forum. I know I probably sound juvenile instead of a married adult with 5 (yes!! 5) beautiful daughters, and although they are supportive, they are extremely emotional about the whole situation. This resolutes in me being emotional, which only brings sadness over a delicate area that Im trying to control.

    I was told by my sister only yesterday, that if anyone spoke to me over the phone/face to face, would never  believe I was 'sick'. I quickly corrected her by saying I wasn't sick, but I was a little broken and would soon be fixed. 

    Your words are soothing and beyond kindness. I hope to share our journey and comparisons (if any) together. I believe everyone needs a Mickey they can call on.

    Much love xx:love:

    'Positive Polly' 

     

  • Btw, 

    I remember your surgery is scheduled for 14th Dec.

    I bet the day can't come quick enough to rid yourself of what I would call, a very unwanted guest!

    I want to say although I know it seems like l'm so wrapped up with my demons, I haven't forgotten that you're going through it all as well. 

    You are in my thoughts and prayers.

    Much love xx:love:

    P. Polly xx

  • Thank you, I'm trying to pack my suitcase to be brought into hospital on Day 2. I know I'll have so much on tomorrow (including a blue boob and urine) that if I don't do it now, I'll forget something very important. I go in to admissions in dressing gown and slippers, lol - she told me I could take pants if I wanted and later put them in my dressing gown pocket xx 

    Thanks for the lovely messages and happy to stay in touch - really glad it's helping you. Wow 5 daughters, lots of emotion and hormones going on for you x 

    love n hugs Mickey xx ️

  • Hello I.Love.life and I am sorry to hear that you are waiting for another biopsy to be done.

    While I know it must be worrying do remember that even if it is getting bigger this still does not mean the cancer will spread and that your situation or outlook will change.  I also think when anyone are worried it could be all too easy to see the situation is worse when actually it isn't. 

    CT scans and MRI's are usually done in early stage breast cancer for different reasons. For example they may be carried out if there is a concern that the cancer could have spread.  This concern might be because the patient has particular symptoms that might be caused by cancer being in another part of the body or if cancer was found in the lymph nodes. 

    I hope next week goes well and that you will be okay. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Caroline 

Reply
  • Hello I.Love.life and I am sorry to hear that you are waiting for another biopsy to be done.

    While I know it must be worrying do remember that even if it is getting bigger this still does not mean the cancer will spread and that your situation or outlook will change.  I also think when anyone are worried it could be all too easy to see the situation is worse when actually it isn't. 

    CT scans and MRI's are usually done in early stage breast cancer for different reasons. For example they may be carried out if there is a concern that the cancer could have spread.  This concern might be because the patient has particular symptoms that might be caused by cancer being in another part of the body or if cancer was found in the lymph nodes. 

    I hope next week goes well and that you will be okay. Please get back to us if you need any more information or support.  You may find it helpful to talk things through with one of the nurses on our helpline.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

    Take care,

    Caroline 

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