Stomach tumour

Since March, my asthmatic mum had extreme pain under her breastbone. Her dr treated her for neuralgia. After 2 months they paid for a dr to look. They thought it was her bones, did several scans and couldn't find anything. She was referred to a pain clinic, which she was waiting for when rushed into hospital last week as she could not stop being sick. She has lost a stone in 1 month, and when I saw her two weeks ago she was breathless, blaming her asthma. She was also told she was anaemic in September, after having pain in her back and tests showed anaemia and a urine infection.

after several tests, they said she has a tumour blocking her stomach at the top where the oesophogus meets. She has been sent home from hospital on a liquid duet and told she has to wait for consultants to meet, which will take over a week. She asked no questions because she was in shock ( my dad was not allowed in with her, and she is deaf in one ear). I live 140 miles away and they have no support. 
 

I feel completely helpless. Is waiting this long,, when someone cannot eat, normal? How on earth was a tumour missed? If this has been growing since March, what will be the chance of surviving this? I am not ready to say goodbye. She is 71 next week and we could not celebrate her 70th due to lockdown last year. Please can someone with experience of stomach tumours answer 

  • Hello there

    I am sorry to hear about your mum being so unwell, this must be a tough time for all the family and especially living so far away.

    It must be upsetting knowing she has had symptoms for many months but it has taken so long to find out what is going on. Unfortunately it can take a series of tests to find out a cause for something and sometimes it is a matter of people going back and seeing their doctor several times to get to the root of the problem.

    I'm afraid there isn't going to be anyone on here who can say much more about this situation. In time you may wish to raise these issues with the hospitals PALS (Patient Advice Liaison) department who can look into things more closely for you.

    At this moment in time the important thing is for the doctors to meet to discuss the plan for your mum moving forward. This usually happens in what is known as an MDT ( Multi Disciplinary Team) meeting. This is where all the specialists come together to discuss patients tests and scan results to decide the best treatment. After this has happened the specialist doctor will be able to discuss the results and the next steps with your mum and dad and answer any questions they may have.

    If your mum is struggling in the meantime with symptoms at home then she should let her GP know or call NHS111 to ask for advice.

    Hopefully you will know more next week. Patients are also usually allocated a specialist nurse who are the main point of contact between patients and the hospital team and a contact number given for them. If your mum and dad need extra support these needs will be assessed and referrals made to the appropriate health or care professionals as required. 

    We have information on our website about most cancers and their treatments so once you know more you may want to have a look at these, but for now try and sit tight and wait to see what the doctors have to say next week.

    Do get back in touch if you need to or if you prefer to call our helpline and talk to one of the nurses in person please do. Our number is 0808 800 4040 and we're here weekdays 9-5.

    All the best to you, your mum and the rest of the family

    Take care

    Naomi