Haematology referral- so so anxious

I was finally (after a year of GP visits) taken seriously about my swollen lymph nodes on my neck today after having them swollen for over a year. I have a referral to the haematology people. I am only 20 and absolutely beside myself with anxiety. I've been getting recurrent infections and had a very fast heartrate for months now and I just have a gut feeling that this isn't going to end well. I'm also stressed that all of this will be happening in my uni city rather than at home. I'm really not sure how I'm going to get through this process of waiting whilst carrying on with my uni course and getting on with normal life... does anyone have any positive stories to reassure me, or any guidance about what will happen at this referral as I'm absolutely terrified.

thank you

  • Hello and thanks for your post

    The most common reason for swollen lymph nodes is infection even sometimes when a person feels well. They can often take several months for them to subside and sometimes they may never go back to their original size.

    I am not completely sure what will happen when you are seen at the haematology clinic. Individual specialists do things in different ways.  But it is very likely that the specialist will take a full history (ask you questions about your health). Then they will do a physical examination. This will include examining your neck and feeling the glands (lymph nodes) there. 

    Depending on the assessment the specialist may order further tests and ask to see you again when the results are available. It may take a while to get others tests organised. I don't think that it is common to get everything sorted in one visit. The doctor may suggest a biopsy, as you know this is the removal of a small piece of tissue to be examined under a microscope in the laboratory.

    You might find that the specialist is able to give you an opinion on the day and there may be no need for further tests or biopsies But if they are unsure you may find that they are reluctant to say much at this first appointment. Please do not assume the worst if the specialist asks for more tests. This does not mean that anything serious is wrong.

    Waiting when you are worried is stressful but I hope you know more about your situation soon. In the meantime you can take a look at the NHS website Every Mind Matters on coping with anxiety and look at their useful tips for getting by.

    Best wishes,

    Celene