CA125 very much raised, but US Scan normal

Hi there

I've just been reading some posts about raised CA125 levels.  I've had / blood tests done.  CA125 level was 134 in May 2021.  Then had an Ultrasound which was clear.  GP repeated the blood test just now and CA 125 level has gone up to 239.

GP says Ultrasound is ok, ovaries are ok (presumably).  My levels look like the highest I've read in the forum.

 

I'm worried as hell as you can imagine.  Worried I won't be around yo bring up my 4 and 2 year olds .

I'm 44 btw.

GP is referring me to gynaecologist now.

Any advise please?  

  • Hello and thanks for the post

    I can imagine its worrying not knowing what may have caused the raised ca125 , but try and not think too far ahead or of worst case scenarios, though I can appreciate it may be difficult.

    There are explanations other than cancer for CA125 to be raised and it's a reason why it's not used in a national screening ovarian programme. 

    It's good that the ultrasound did not show anything of concern, but the gynaecologist may well decide on carrying out some further tests.

    I'm afraid that you will need to wait to be seen by the gynaecologist as at the moment no one will be able to say what may be causing this rise.

    Try and hold your nerve and keep busy if you can - I hope you will get to be seen soon

    All the best

    Wanda