Lonsurf for stage 4 colon cancer

Good morning. I am posting with the hopes of gaining some information regarding my fathers cancer prognosis. He lives in the US and I am in England.

 

He was diagnosed with stage 4 colon cancer in July 2019. He also had secondaries on his liver (7 tumours). He had an operation to remove the colon cancer and started on erbitux for 6 months- this shrunk the tumours significantly. He then changed to a different chemo for 6 months. 
 

A scan last week showed that more tumours had grown on his liver and the old ones had grown back, clearly the chemo wasn't working. He has now been changed onto lonsurf chemo tablets and I believe this is the last line of treatment they can offer. 
 

Has anyone else been through anything similar? My dad is hoping to come to England for my sisters wedding in June 2022 but we really don't know if that's even realistic. He currently still works and leads and independent life. I guess I'm asking what his prognosis is looking like at this point. 
 

any help would be greatly appreciated. 

  • Hello and thanks for posting

    I am sorry to hear about your dad's situation and appreciate you wanting to know more about what the future may look, especially living so far away from him.

    Unfortunately without anyone on here being involved in your dad's care it is difficult for any of us to be able to say what might happen next or how long he may have to live. Whilst his own specialist doctor is probably the best person to ask about this even they may not be able to predict the future as it will still depend on how the cancer responds to the Longsurf.

    Sadly the prognosis of a patient with advanced disease when someone is out of treatment options is often limited. The research findings from the studies carried out looking at Longsurf showed on average that it increased patients survival for a number of months compared to the placebo group. Of course for some patients taking this drug they do live much longer than this whilst for others it is devastatingly much less.

    As you say this is a third line treatment and there may not be anything that can be done after this. At times like this it is about taking things a day at a time and your dad enjoying the time he has and seeing how things go.

    I am sure the doctors involved will be keeping an eye on how things are and how your dad is responding. Do keep talking to your dad to find out how he is and try and hear from him what the doctors have said to try and keep in the loop.

    Please get back in touch if you have any more questions or if you would prefer to talk things through over the phone please call us on 0808 800 4040 Monday-Friday 9-5.

    All the best

    Naomi