Recurrent dermoid cyst

Hi. In 2019 (aged 22) I had a 13cm mucinous cyst (mucous containing) cyst removed from my left ovary which was picked up in an MRI as I had left abdominal pain. At the time I also had two 2cm and 1cm cyst on my right ovary but this was left as it wasn't causing any symptoms. 

A month after surgery the pain came back and I started getting really severe period pains especially on my left side. After an ultrasound scan it showed a 3cm cyst on my left ovary again and now after several scans over 2 years its grown to 8cm. It does cause me a lot of pain and discomfort and I wanted some advice on if anyone has had recurrence and if they opted for surgery again. I'm afriad to go for surgery as it increases scarring and reduces healthy ovarian tissue which can affect fertility. I am 24 with no kids and family is quite important to me. Similarly im scared if I leave it, it could lead to torsion where I may lose the entire ovary. I would appreciate any help. Thank you in advance. 

  • Hello ZainabJP and thanks for posting, 

    I am not sure if anyone else will come along to share their story, but even if they do, because everyone's situation is different it might not shed much light on yours.

    It sounds like you have a dermoid cyst now and had a mucinous cyst removed before from the same ovary. I have read that these two different types of cysts can sometimes be associated with each other. 

    As far as I know large dermoid cysts don't usually go away by themselves so I think surgery is often necessary eventually because of the symptoms they cause.  Although a little bit of the ovary may be destroyed or removed along with a cyst during the procedure, I think surgeons try to minimise this and it would be a good idea to talk to your gynaecologist to see what they have to say about the possible overall impact on your fertility. I think it can vary depending on the type of cyst, but they will know more. Also I don't know if the size of a cyst when removed has any bearing on things, so this would be worth asking about. 

    Ovarian torsion can occur even without having a cyst and doesn't always result in losing an ovary as sometimes the surgeons can unravel the torsion in a keyhole operation. 

    I think the impact of cyst removal on fertility is probably quite a complex area and it would be good for you to get the information you need from your gynaecologist because they are specialists and also know all about you. I think these days a lot of people are reluctant to contact their NHS specialist because of the pressure on the NHS. But the best source of information is always your own medical team and I think they expect patients to have questions. It sound a bit basic, but it often helps to write things down so you don't forget to ask what you need to know to be able to come to a decision.  In medicine there is always bit of uncertainty about how things will turn out, but doctors can still be pretty sure about most outcomes. 

    I am sorry I can't tell you anymore but hope your gynaecologist can. 

    If you want to talk anything over, please call us on 0808 800 4040, we are around weekdays from 9-5. 

    Best wishes,

    Julia

  • Hi Julia, 

    Thank you so much for getting back to me. 

    I have my appointment next week and I will ask my gynaecologist. 

    Kindest regards, 

    Zainab