Essential Thrombocytosis and Hydroxycarbamide dosage

I've had Essential Thrombocytosis for 6 and a half years.

I'm recently seeing a different haemotologist as mine is not available.

My platelet count flucuates drastically .My previous haematologist only ever reduced or increased my Hydroxycarbamide by one or 2 tablets a week.Even when my platelets plummeted to 242, he said carry on with the same dose, which was obviously the right thing to do as my following bloodwork revealed platelets of 500.He always saw me every 12 weeks.

My new haemotologist has reduced my Hydroxycarbamide by 7 tablets a week because my platelet count was 350 and doesn't want to see me until 18th 2022! 

This just doesn't sit right with me, because after 6 and half years of being on Hydroxycarbamide, I've never had such a drastic reduction and been left so long without a check up.I'm worried that in the mean time my platelets can soar , which they always do and I'll be left at risk of a blood clot.

Has any one else had such a big reduction of meds?

Or does any one else think that he's made a mistake?

 

 

 

  • Hello there

    I am sorry to hear you are on Hydroxycarbamide and have been left concerned about the recent changes to the dose and follow up arrangements.

    I'm afraid as no one on here is involved in your care and because every patients situation is different it is difficult to be able to say if this is correct or not. I suggest you speak to your specialist team and query this. If you have a specialist nurse you could contact them to ask or contact the haematologist secretary and raise your concerns with them.

    I hope you find out more and have a better understanding of things soon.

    Please get back if you need to or have further questions.

    All the best

    Naomi