Hello and thanks for your post,

I am sorry to hear that you are worried about your health.  There may be other causes that may explain your headaches but we can't diagnose you. I can understand that it can be difficult living with a life long condition knowing when to worry or not  about certain symptoms.

If you are concerned about your headaches and the change in your blood levels then do discuss this with your GP. It is interesting to hear other members on the forum with similar conditions but do remember everyone's situation is slightly different.

Macmillan have produced some information about this condition and worrying symptoms to look out for which you can see here

Small variations in tests are to be expected but for your own peace of mind do discuss this with your GP. I am sure if they were concerned then they would get in touch with your haematologist and you could have an earlier appointment. 

You have posted in ask the nurses, if you post on another thread you may get more responses.

I do hope that your headaches get better but do make an appointment with your GP so you can talk about your concerns.

If you want to chat to one  of the nurses about any of this then do give us a ring.  The number to call is Freephone 0808 800 4040 and the lines are open from 9am till 5pm Monday to Friday.

All the Best,

Catherine